My Life being Disabled 30/12/07

I asked the nurse, this morning, if I could go to NETTOS. She said my carers were busy because there are people staying with us that are on Respite (disabled people that live at home and their Carers are having a rest). It's now 15:15 and I have not gone. I've been using my computer and burning "NOW 68" CD.

My Life being Disabled 29/12/07

This morning my nurse attempted to give me a bladder wash but it failed so she said she would try again after my shower. It failed again so she changed my catheter.

My Life being Disabled 28/12/07

The Life Skills Co-ordinator asked me this morning if she could take my library book back. I told her that I've extended the loan period and I would like to go with her. She said if I go she will have to take a carer with us ? I told her I wanted to get another library book so she is going to try another day, possibly Wednesday.

My Life being Disabled 27/12/07

I woke up at 06:30 because I had a hospital appointment for 10:35 with the Orthitics(appliances) to get a new pair of black shoes. I need a pair of shoes because I am going on Work experience with the Jobcentre organised by Remploy. I called my nurse to have a bladder wash then I had a shower. I got dressedand went to the dining room to have my breakfast. I had to be ready for 08:30 for the ambulance but at 09:30 my nurse decided to phone the hospital. They said they hadn't organised transport and cancelled my appointment. They would organise another one with transport. Then an ambulance came to take me to the hospital but wshen we got there my appoitment was cancelled ! Luckily they accepted my explanation and I had my feet measured. My new shoes will be ready at the end of January. The hospital will give me another appointment(with transport). I extended my library book because no-one would take me today.

My Life being Disabled 26/12/07

I remembered today that I have to take my library book back but the library does not open until 27/12/07 and I'm going to the hospital tomorrow to see the Orthitics (they look after my feet because after my stroke one of my feet is paralysed so I have to have special shoes). My appointment is at 10:35 and an ambulancse is booked.

My Life being Disabled 25/12/07

This morning the nurse woke me up at 09:15 to give me a bladder wash. I get a bladder wash on Tuesday, Thursday and Saturday to wash my bladder because my catheter is getting blocked with grit. After I cleaned my teeth, shaved, showered and got dressed I went to the dining room and had my breakfast. A carer told me that we were having Xmas lunch early at about 12:00. I stayed in the dining room. We had a choice of prawn cocktail or tomato soup,turkey, Xmas pudding, mince pie and coffee.
After that we went to the cinema lounge to watch films.

My Life being Disabled 24/12/07

I asked the nurse if I could go to the Fitness Centre but after asking all the Carers she told me that nobody wanted to take me. She told me that the Care home would give me the money that I paid in subscriptions. Plus in the New Year she was going to tell Wheelchair Services that my independence was suffering because nobody would take out except in the mini-bus.

My Life being Disabled 23/12/07

I asked the nurse if I could go to the Fitness Centre tomorrow because it is closed on Wednesday(Xmas Day). She said she would leave an entry in their diary for tommorow nurse. I said I would like to go tommorrow because I'm going to the hospital on Thursday.

My Life being Disabled 22/12/07

I went to the library this morning because the book I borrowed had to be returned on 25/12/07. But the library was closed and we couldn't read the notice on the door. On reading the information on the internet I found the library is open:
Monday 09:00 - 12:30 and 13:00 - 17:00
Tuesday 09:00 - 12:30 and 13:00 - 17:00
Wednesday 09:00 - 12:30 and 13:00 - 19:30
Thursday 09:00 to 12:30 and 13:00 - 17:00
Friday 09:00 - 12:30 and 13:00 - 16:30

This bank holidays it is closed 24/12/07 - 26/12/07 and 30/12/07 - 01/01/08

Tel: 01226 712575

My Life being Disabled 21/12/07

Today was my Care homes Xmas dinner. All the residents, who capable of travelling, went to a public house just outside of Grimethorpe called DARDS. We had a choice of starters, soup or prawn cocktail, turkey etc., christmas pudding, mince pies, after eight mints and coffee. It was good my only complaint was there was too much gravy. Speaking to the landlord I found out he is going to convert a toilet into a disabled toilet with a hoist !

My Life being Disabled 20/12/07

This morning I asked the nurse to chase my wheelchair repair people and ask when are they coming back to get my indoor powerchair working again. They came out on Friday 14/12/07 but did not fix it. He said he would try something at their HQ first and return on Tuesday. I also asked to return my library book but my nurse said the life skills co-ordinator is very busy today. She's organising our Xmas Party today. Later on 15:30 a carer aske me to go to the Xmas party, it started at 15:00 but they forgot about me. The music was very loud and I didn't enjoy it. It finished at 17:00. The nurse told me that the wheelchair repair people couldn't repair my indoor powerchair so they have to get authority from Wheelchair Services to adapt my indoor powerchair.

My Life being Disabled 19/12/07

This afternoon I went to the Fitness Centre. I did 3 rounds of excercises. Next week I am going to try and go on Xmas Eve (Monday) because they are closed on Xmas day & Boxing Day.

My Life being Disabled 18/12/07

This morning I had a bladder wash because my doctor said I should have one every two days.

My Life being Disabled 17/12/07

This morning I got two letters, one from the DVLA informing me that I no longer owm my Mobility vehicle and one from the Electoral Services with a application form to vote using the postal services.

My Life being Disabled 16/12/07

I finished my Powerpoint presentation "MY LIFE BEING DISABLED" for the assistant manager of my Care home.

My Life being Disabled 15/12/07

I started looking at TQM.

My Life being Disabled 14/12/07

After lunch somebody came to look at my indoor wheelchair. It has not worked since I moved Care homes in September. He found the cath on my moulded seat does not work and my charger is missing. He will look into my catch problem at their HQ and will get another chager for me.

My Life being Disabled 13/12/07

After lunch I had a appointment with the Occupational Theripist at Pinderfiels Hospital to get a new splint. She made a new one and she advised me to wear it on night. Previouly she had told me to wear it during the day. She said she will phone after a weekto ensure that ceverythings alright. I will get another appointment after 3 months.

My Life being Disabled 12/12/07

I am suppose to go to the Fitness Centre on a Wednesday afternoon but the senior nurse told me that nobody would take me ! It is difficult to push my wheelchair. At 18:00 we had a Carol service where a band played Xmas carols.

My Life being Disabled 11/12/07

This morning my nurse tried to give me a bladder wash but I was by-passing so she had to change my catheter. Later on we went to Morrisons and I bought some more Christmas cards. I spent this afternoon working on the web site for my Care home.

My Life being Disabled 10/12/07

I emailed Alliance & Leicester this afternoon:-

Firstly, I'm using your Email address because it is the only I can find for Alliance & Leicester. My complaint is I phoned you on 0870 3333444 at 13:42 this afternoon 10/12/07 to enquire what this payment from my account was. The payment reads:-
08 DEC 2007
CARD PMNT 07DEC CLUBPREM.COM
£9.95 But your adviser was unabled to log on to your computer and asked me to phone back in about thirty minutes. She could not tell me if your system would be working and she would not return my call. This phone call cost me £2.00 and lasted 8 minutes and 47 secounds. The service you gave was disgusting !

To make matters worse the chiropidist came to cut my toenails she charge £18 for 10 minutes work !

My Life being Disabled 09/12/07

I've been working on my powerpoint presentation. Today when I checked my bank account a company called PremierClub had taken a sum of money out of my account. I emailed them to find out what this for.

My Life being Disabled 06/12/07

This morning I got up at 06:00 because I had an appointment with Wheelchair Services in Sheffield at 09:45. The letter said be ready at 08:00. The ambulancecame at 09:30 and I arrived at 10:15. Wheelchair Services were expecting me to bring my indoor powerchair but my senior nurse had condemned it. I explained this to Wheelchair Services but they wanted to know why the senior nurse did not tell them. I didn't know as well ! They examined my moulded seat but said in Sheffield they use a different manufacturer. We discussed the plan of actions, which are:-

1. Get my indoor powerchair working again. - to be completed this week
2. Get a new moulded seat. - appointment for 16/01/08
3. Get a new indoor powerchair(can be used externally).
4. Pass my Electronically Powered Indoor/Outdoor Chair (EPIOC) assessment.
5. Convert my indoor powerchair to an indoor/outdoor powerchair.

In the afternoon I put in a bid, on E-bay, for a 4 kg dumb bell of £2.50 the bidding ends at 16:00 10/12/07
10/12/07

My Life being Disabled 05/12/07

Last night the National Media Museum phoned to say thankyou for my complements which I gave after I went there to see a film in 3D.

I went to the Fitness Centre this afternoon, paid my monthly subscription and my instructor increased my excercises. When I came back I emailed Barnsley Council again about the cstate of the footpath outside my Care home.

Can you add this to my complaint about the pavement in Elizabeth Street, Grimethorpe. For the past 2 days a wall in this street has been demolished and the rubble has been put on the pavement. There some building bricks, concrete but the main item about my complaint is a very large concrete block which nearly makes it impossible to get pass on the pavement for wheelchairs and pushchairs.

My Life being Disabled 04/12/07

This morning I returned my book to the library. I completed this book in 3 days it was very good and the writer was Rodney Bewes (The Likely Lads). I also went to the Post Office to buy stamps for my Xmas cards. After dinner I started to create a web site for my Care home.

My Life being Disabled 03/11/07

I went to Morrisons this afternoon and I bought some Xmas cards and some mints. There were 3 residents and 2 carers. When we came out it was raining heavily. After dinner my nurse asked why I was going to Wheelchair services on Thursday. I told her it was for Electrically Powered Indoor/Outdoor Chair EPIOC training. She told me to inform them that she had condemned my indoor wheelchair because she thought it was dangerous.

My Life being Disabled 02/12/07

I wanted to go to NETTO's today but there were no carers willing to take me because of my manual wheelchair. It's too big in weight and height. I am going to see Wheelchair Services on Thursday to see if I can get a power wheelchair.

My Life being Disabled 01/12/07

Because it's the first of the month in my Care Plan I should have my Blood Pressure taken. At 15:00 I asked my nurse if she would take it and it 140/90 but last month it 120/70. I asked my nurse if this was O.K. and she said it was.
I went to the Xmas fair in my Care home where I won a box of smarties, a candle, some wooden Xmas decorations and a pen.