Wednesday, May 13, 2015

My Life being Disabled April 2015

01/04 This morning I asked the nurse what time is my appointment to St James. My appointment is at 0930 and it's something about my eyes that could last for 3 hours. I told her that I want to get up at 0630. For the rest of the morning I used my PC. My eldest son phoned to tell me that he's coming after lunch. He came at 1400 and left at 1545. After tea I used my PC.
02/04 I got up this morning because I had an appointment for 0930 at the eye clinic to get my eyes checked. My transport came at 0845 and we arrived at St James at 0915. I got called for a nurse to test eyes and to put drops in my eyes. We waited for a eye specialist. He tested my eyes and said they are OK. It was 1015 and went to the Patient Transport enquiry to let them know we had finished. Our transport arrived at 1100 and we got home at 1130. I used my PC to organise Asda to deliver my shopping tomorrow between 2100 - 2300. After lunch I asked the nurse to forward my requests to attend Wetherby races and to go to England v New Zealand on 01/11 at 1500 in Hull.
03/04 In morning I went to the coffee morning in the Activities room. After lunch my bowels opened my carers changed my pad. For the rest of the afternoon I put my feet up and watched TV. After tea I used my PC.
04/04 I used my PC in the morning. In the afternoon I went to the Activities room and failed trying to get their PC and Screen working both together. After I used my PC.
05/04 In the morning I didn't get up until 1200 because our hoist was broken. After lunch I used my PC. After tea I used my PC.
06/04 In morning I got ready to go to Tetley's Stadium to watch Dewsbury v Bradford at 1500. I used my PC before setting off to Tetley's stadium at 1245. We arrived 1330 and shown to the car park by a steward. I asked if this was the Disabled car park and he said it's full. We went to receipton and outside the car park was empty ! We went into the reception and walked through to the lift. This wasn't suitable for my electric wheelchair because my carer and driver had to walk up to floor 2. I had to travel by myself and couldn't reach the alarm also the lift doors closed when I was getting in. It was 1410 and the bar was on floor 1. My carer went to buy drinks and I noticed that the Disabled viewing platform only accommodated 4 wheelchairs with our carers sat behind. There was 2 disabled viewing platforms at the other side of pitch but I couldn't see any carers. A stand support stood right in front the Disabled viewing platform. Before the match started I went to the disabled toilet but this on the 1st floor. Which meant that I had go the lift again but when I got there it was locked and the key held the bar. I went to the bar but it was packed eventually I asked a person who was working if I could have the key. The toilet was O.K. but I had the problem again. I got back just for the kick-off. When play was round about the centre I couldn't see. It was really hot and with a crowd of over 4,000 it was full, mostly by Bradford fans. Dewsbury lost 16 v 30. It was chaos at the end. Trying to get out of the car park was very difficult. After we went to the Mermaid Fish restaurant. We got home at 2010.
07/04 I used my PC all morning and most of the afternoon.
08/04 I used my PC all morning apart when my GP came to look at my feet. In the afternoon I had feet put up and I watched TV. In the evening I used my PC.
09/04 In morning I went to Crossgates to get 2 photo for my passport. I went to Wilko's and bought 2 continental and went the Post Office to post it. After lunch I used my PC. After tea I used my PC.
10/04 In the morning I used my PC. In the afternoon I went Seacroft town centre and on the way back I reported cars parked on the pavement on Naburn Drive. After I used my PC.
11/04 I used my PC in the morning. After lunch I put my feet and watched TV but at 1600 my bowels opened and my carers changed my pad. After tea I used my PC.
12/04 I used my PC in the morning to investigate a holiday at the Confortel Fuengirola but the travel agent Hotels.com said there's nobody there. I will try tomorrow. In the afternoon I put my feet up and watched TV but at 1600 my bowels opened and my carers changed my pad. After tea I used my PC.
13/04 In the morning I used my PC and the unit manager informed me that nobody wanted to volunteer for a holiday in Fuengirola. In the afternoon I put my feet up and watched TV. I phoned Bradford and ordered tickets for the match Doncaster v Bradford on 26/04 at 1400. After tea I used my PC.
14/04 I asked my carers that I wanted to speak with Activities about my holiday in Fuengirola and getting Stevo to attend the Huntingdon's Disease Association Night on 20/06. After lunch I put my feet up and watched TV.
15/04 I phoned my Social Worker about me going abroad for a holiday - she said she's going to speak with the management of Ravensdale. In the afternoon I put my feet and watched TV. I used my PC after tea.
16/04 This morning I used my PC and replied to an email from Doncaster about hospitality packages. In the afternoon I attended the Carer's Forum from 1300 - 1500. After I went my room and used my PC.
17/04 This morning I found a restaurant in Doncaster that we can go to after match Halo Lounge. I emailed and find out it was suitable for wheelchairs. I booked a table for 3 on 26/04 1700. I received an email from Discovery Holidays giving me a quote of nearly 7k for me, 2 nurses and 4 carers to stay in Las Palmeras Hotel for bed and breakfast for 14 nights. I forwarded it to my brother. At 1200 I had my lunch because I had an appointment with Wheelchair Services to have a driving test. It lasted a hour but I passed. We came home and I used my PC. After I used my PC and I got a reply from my brother telling me to forward the email to Ravensdale manager.
18/04 In the morning I used my PC. After lunch I put my feet up and watched my TV. After tea I used my PC.
19/04 In the morning I tried to buy a new Bulls shirt but the phones were switched off. I used my PC before lunch. After I put my feet up and watched TV. After tea I used my PC and my wife phoned me.
20/04 I went to see the manager about my holiday Fuengirola and he's going to speak to my brother Peter. I'm using my PC. After lunch I put my feet up and watched TV but at 1500 Activities  came to tell me there's a quiz in our lounge. It finished at 1630 and I went to my room. After tea I used my PC.
21/04 In the morning I used my PC and I bought a new green shirt from Bradford Bulls.
24/04 I got my new shirt from he Bulls and I went to the coffee morning. In the afternoon I phoned my Social Worker to countersign my application for a passport and left her a message. I used my PC and my bowels opened and my carers changed my pad. After tea my eldest son phoned he wanted to go to Doncaster on Sunday.
25/04 I used my PC in the morning. In the afternoon I put my feet up and watched TV.
26/04 I got ready to go to Doncaster, Keepmoat Stadium to watch Doncaster v Bradford at 1400. My eldest son borrowed a WAV for the day. We set off at 1215 and arrived at 1315. The Disabled car park was at the opposite end stadium and it took me 20 minutes to get there. We said we wanted to watch the match from the elevated viewing platform. The lift took us up level 2 and from the viewing platform could hold 5 wheelchairs with carers sat next to them. It was a good stadium,  After the match my son took me home and I ordered nabew khana from Jinnahs.
27/04 In the morning I used my PC but when Activities asked me if I want to go to Tescos I said I wanted. We set off at 1130 and arrived 1230. We had lunch in the café in Tescos where I Lasagne with Garlic bread. We shopped in Tescos until 1430. We got home at 1530 and I used my PC.
28/04 In the morning I saw my GP about my leg and an itching head. He prescribed some tar shampoo. I used my PC for the rest of the morning. In the afternoon I put my feet up and watched TV. After tea I used my PC.
29/04 In morning we, myself and 2 residents with 3 carers went to Tesco's. We had lunch Tesco's café and went shopping. I bought 2 pairs of shorts, kitkats, a pizza cutter and some sugar free polos. After I put my feet up and watched TV. After tea I used my PC.
30/04 In the morning I had my monthly Care Plan review and I an email from the manager giving me costings for my holiday abroad. After I used my PC. After lunch I put my feet up and watched TV. After tea I used my PC.

Tuesday, May 12, 2015

My Life being Disabled May 2015

01/05 I went to the coffee morning where I won a box of Milk Tray. I saw Emma the OT who's dealing with my holiday. In the afternoon  I had my fingernails filed and I used my PC. After ea I cleaned my teeth and used my PC.
02/05 This morning I used my PC and I asked the nurse if I could go to Tesco's by myself this afternoon. After lunch I went to Tesco's by myself but while I was there the nurse phoned to tell me I didn't sign the form and she sent a carer to help me ! We came home, unpacked my shopping and the nurse explained the form and the consequences of me going out by myself.
03/05 In the morning I used my PC. After Sunday dinner I used my PC and at 1600 my bowels opened and my carers changed pad. After I used my PC.
04/05 The match Bradford v Halifax is postponed on 17/05 because Halifax are still in the Challenge Cup. I chosen Bradford v Doncaster on 07/06 instead. I asked my carers if I could go swimming but they told me to go see Activities.
05/05 There was a group of staff in the corridor this morning when I for breakfast. I thought I heard that a resident had died over night. I used my PC for the rest the morning. After lunch I saw my GP about my hernia in my stomach, my right leg and he said do my bowels work correctly and said no. He prescribed another drink to take daily. I got a quote from Saga for travel insurance of 30 pounds.
06/05 I emailed the Regional manager to find out what her Passport number is. For the rest of the morning I used my PC. In the afternoon watch 2 movies on my PC. The manager gave me the passport number for the Regional Manager. After I used my PC.
07/05 I went to vote in the school opposite but I couldn't in because the door into voting room was too small for my electric wheelchair. I complain Leeds City Council and copied it to Richard Burgon and Pauleen Grahame. After lunch my bowels opened and my carers changed my pad. I went shopping to Seacroft town centre. When I finished, I came home, went my room, unpacked my shopping and used my PC. After tea I used my PC.
08/05 In the morning I used my PC. I had lunch at 1200 because I had an appointment with the Podiarty at 1440. My transport came at 1300 but the driver looked at my wheelchair and decided it wouldn't in his vehicle. He contacted his control to get a larger vehicle. This came at 1400 but they decided their vehicle wasn't big enough. They didn't take me and I went inside to phone their Complaint Dept.. I tried from 1430 - 1530 but nobody answered and I sent them an email. After Disabledholidays.com emailed me to tell me no charter flights will allow me to take my wheelchair on their planes.
09/05 I used my PC this morning and I emailed my gp's secreraries about my medicines. After brunch I used  my PC, put my feet up and watched a movie on my PC. After tea I used my PC.
10/05 I used my PC in the morning. In the afternoon I put my feet up and watched a movie. After I used my PC.
11/05 I used my PC in the morning and contacted Amazon because my new TV hadn't arrived. In the afternoon I went to Tesco's and came back. After I took part in a quiz, unpacked my shopping and went on my PC. In the afternoon
12/05 I ordered a mini TV, aerial and a case from Amazon. I the afternoon I put my feet up and watched TV. I was told I can't fly because my wheelchair is too big. After tea I used my PC.
13/05 In the morning I used my PC. In the afternoon I put my feet up and watched TV. After tea I used my PC.
14/05 I interviewed applicants for Carers post but 2 didn't turn up and after the 3rd I left. I went to my room and I used my PC. After lunch I put my feet up and watched TV. After tea I used my PC.
15/05 I went to Coffee morning where we played Bingo and quizzed, After lunch I used my PC,  I put my feet up and watched TV. After tea I used my PC.
16/05 In the morning I used  my PC. In the afternoon I watched Leeds beat Huddersfield 48 - 16. After tea I used my PC.
17/05 In the morning I used my PC. After Sunday lunch I put my feet up and watched TV. After tea I used my PC.
18/05 I found out that our driver who works on Activities is leaving at the May. I used my PC and wrote a shopping list. After lunch it was raining and I decided to put my feet up and watched TV. At 1600 my bowels opened and my carers changed my pad. After tea I opened my parcel from Amazon with my mini TV, it's bag and aerial. I used my PC.
19/05 I used my PC until Patient Transport came at 1030 to take to the dentist where I had an appointment at 1130. He tried my new teeth before he sent them away to be finished. He made another appointment on 02/06 at 1100. While waiting for our transport I made an order for Asda home delivery for 20/05 at 1500. We got home at 1330 and I had lunch. After lunch I put my feet up and watched TV. After tea I cleaned my teeth and put together my mini TV.
20/05 This morning the nurse reported my electric wheelchair to Wheelchair Services because my right footrest wouldn't go down and my seat was cracked. I went on my PC. After l put my legs up and watched TV. After tea I went on my PC.
21/05 I used my PC in the morning. In the afternoon I had my hair cut. I put my feet up and watched TV. After tea I used my PC to order a pair of Chinos from Jacamos.
22/05 In the morning I went to the Services Users meeting in the Activities room. It was chaired by Emma Simpson the OT and we discussed the chair for the meeting which I volunteered. Terri on Activities is leaving at the end of May. I suggested her replacement should be able to drive. Activities ad already the new handiman if he would drive. Why do I have to wait for my prescriptions ?? I'm waiting for my Zinc and Castor Oil and my Sycno bags fore more than weeks. I told the meeting I want to go to Franco's for meal and Hiedi said to see her later. After lunch I emailed Franco's to ask if there any hazards for wheelchair users ? They replied saying wheelchairs can use Franco's.
23/05 During my bladder wash my catheter became blocked and 3 nurses changed it with difficulty. After breakfast I used my PC. After lunch I put my feet and watched rugby league on my TV. After tea I cleaned my teeth, put my feet and watched my TV. I watched Bradford beat Halifax 18 - 4.
24/05 I went on my PC in the morning. After Sunday lunch I put my feet up and watched Rugby League on TV. After tea I used my PC.
25/05 The nurse remaindered me that I have my Care Plan review on Wednesday. She asked a carer to help me with my Property list. I used my PC and helped my carers with my property list. After lunch I used my PC. Later I put my feet up and watched TV. After tea I used my PC.
26/05 My nurse told me that my bladder washes were being reduced to 1 per week. After breakfast I used my PC. My GP came at 1200 and I told him about my red leg he prescribed antibiotics. I told him I new stockings, Zinc and Castor Oil, a new splint for my right arm and need more Paracetamols and he said he'll speak to our nurse. After lunch I used my PC.
27/05 This morning I used my PC before attending my monthly Care Plan review. At 1130 I met with my Advocat and my named nurse  After lunch I put my feet up and watched TV. After tea I used my PC.
28/05 This morning I used my PC. I organised the driver, my carer, my eldest son and his wife and me to go to watch Bradford next Sunday 07/06 with a meal. In the afternoon I went to Tesco's and I back at 1530. I unpacked my shopping, used my PC and sent an email to Richard Burgon MP copied to Pauleen Grahame councillor about the footpaths. After tea I used my PC.
29/05 I used my PC until 1200 when Activities had a coffee morning in their room. After lunch I used my PC.
30/05 This morning I used my PC. In the afternoon I watched Super League watching Widnes beat Salford 38 - 14. After tea I cleaned my teeth and used my PC.
31/05 I phoned Sky about their fibre broadband which terminates at the cabinet. I used my PC. In the afternoon I put my legs up and watched the Magic