Sunday, November 30, 2008

My Life being Disabled 30/11/08

Yesterday I went to watch Grimethorpe Rugby League team it was suppose to kick-off at 14:00 but it nearly 14:45 because the away team from Silsden, which near Skipton, were late. Grimethorpe won easily 46 - 8. I still enjoyed it and there were about 100 spectators.

Last night while watching a movie called 'Enemy of the State' starring Will Smith I remembered that before my stroke when I worked for British Telecom as Duty Manager of the North and Midlands. I use to liaise with MI6. They were not known as MI6 but everybody knew who they were. Every Xmas they would visit us, take us out for a meal, we could eat and drink as much as we wanted but the bill was always settled in cash ! I can't remember what the duty managers did for them but obviously it wasn't always legal.
Later we went to the Christingle market in Barnsley. It was very busy and one of the residents got a chracture drawn by an artist in the middle of the market. All the carers bought a hot sandwich to eat because all of them were hungary. There were all of German market stall most of them selling food. We stayed for 2 hours and then came back for our Sunday lunch.

Saturday, November 29, 2008

My Life being Disabled 29/11/08

This morning one of the life skill co-ordinators asked me if I wanted to go to the 'Christingle' in Barnsley tomorrow at 13:00. I said I wanted to go but I didn't know what a Christingle was. I look it up on the web and found:

The Christingle has its origins in a Moravian children's service held in a castle in Germany on Christmas Eve in 1747.
The bishop conducting the informal service gave each child a lighted candle, tied with a red ribbon, in memory of the Saviour's coming which he said has kindled a flame in each heart which keeps burning "to His joy, and our happiness".
Much later, this simple candle was replaced by a more elaborate Christingle which is rich in symbolism.
Our modern Christingle consists of:
an orange . . . representing the world
a red ribbon, tied round the orange . . . representing the blood of Jesus
fruits and sweets, skewered on 4 cocktail sticks which are pushed into the orange . . . representing God's good gifts - the fruits of the earth and the four seasons
a lighted candle, pushed into the centre of the orange . . . representing Christ, the light of the world

I look forward to tomorrow !

One of the carers told me he is taking me to the rugby league match this afternoon. Grimethorpe are playing Silsden Park Rangers are playing at 14:00. Silsden are the bottom team in the 5th Division of the Pennine League but Grimethorpe are next to them at 10th. So it should be a good match.

Friday, November 28, 2008

My Life being Disabled 28/11/08

I am paralysed on my right, I have no short term memory and suffer from spontaneous panic attacks. I have decided to BLOG my complaint with my bank. This occured when I was in hospital from 13 Nov 2008 to 22 Nov 2008.

When I was in hospital my bank decided to close my current account. I did not BLOG this because I thought it was just a simple mistake ! BUT I phoned them last Sunday and told them I did not respond to their letter because I was in hospital. They said they could not deal with it on a Sunday but they would deal with it on Monday.

On Monday at 15:30 because I had not heard from them I phoned again and eventually spoke to someone who said I was with the wrong department, they were the Closure Department but not the Voluntary ! I asked to speak to a manager but they said all the managers were at a meeting and one will call me back later. At 17:00 ( I was in the dining room - noisey) A female manager contacted me and told me she was dealing.

On Tuesday by 12:00 I had not heard from my bank so I raised a complaint using the banks procedures :

On Sunday I read my mail for the first time since I went to hospital on 13/11/08 because I'd been in hospital. I got three letter from you, my current account monthly statement, a letter telling me that you were going to close my current account and a cheque from you. I phoned you but my telepin did not work because mine is 4 figures and it should be 5 figures but luckily I had a number for your security team. I told them what had happened and although they could not deal with it today they said they would deal with it tomorrow. I told them I needed cash because I had to pay my Care home. I had over £100 in my Onile Saver Issue 2 account. I asked for my telepin but they would not give it to me.
I waited until 15:43 when I phoned again to find out what was happening eventually, after about 30 minutes, I was told that you can't reopen my account and can open another account which I can use. I asked if my debit card would work and said no. I explained my situation, once more, and asked to speak to a manager. You said there were no managers available but one would call me back later. Somebody phone around 17:00 to tell me that she was dealing.

This morning o(25/12) after checking my accounts on the web there is no change but I am escalating it to you.

On Friday 28/11/08 I ESCALATED TO THE GROUP CUSTOMER RELATIONS

Group Customer Relations,
Unfortunatley I only have the Email address of the customer complaints team and I can only communicate via Email or written form. I am relying on the customer complaints team to forward this complaint to the Group Customer Relations team as step 2 in your complaints procedure. I prefer to use Email because I am paralysed on my right, I suffer from spontaneous panic attacks, I have no short term memory and Email is the greenest way to communicate.
I have had no response since I started my complaint on 25 Nov 2008 at 12:01. Nobody has contacted me by any method. Yet my current account has been closed when I was in hospital from 13 Nov 2008 to 23 Nov 2008.I am desparate for some money. I have a cheque from you for over £100 but I can't cash it and I need cash to pay my Care costs.

I asked my nurse if I could go to the local rugby league match tomorrow at 14:00. Grimethorpe play their matches at the end of road. She said she will ask the life skills co-ordinators.

Later on I heard a nurse on the telephone about one of our residents who was in Barnsley hospital but they wanted to send her home because they were conducting a deep clean of the ward she was in. (sounds familiar). I asked the nurse which ward she was on but she didn't know. Anyway she told the hospital that if our resident goes for 2 days with sickness and diarrheo she can come home. The hospital wasn't very happy.

I have to become a Blood Doner but first I will have to ask my nurse.

This afternoon my catheter was by-passing. This means my urine its't flowing to my catheter bag. I told my carers who put me onmy bed and found the catheter pipe was twisted. They changed my shorts and my pad.

Later on I went to computer room and I got this response from my bank

'I have passed this to the appropriate area in order that this may be investigated and a response sent to you.'

Thursday, November 27, 2008

My Life being Disabled 27/11/08

This morning one of the Life Skills asked me if I wanted to go to a pantomime in the local community centre ? I said Yes it on 14/12 at 16:00. I am really busy this December with

04th My favourite carer's birthday
09th 12:00 - 15:00 Xmas lunch at the Marquis
13th 12:00 Xmas Fair
14th My brother visiting
14th 16:00 Local panto
23rd 15:00 Xmas show

Wednesday, November 26, 2008

My Life being Disabled 26/11/08

This morning I saw my G.P., she already knew about Panic Attacks and the hospital had already prescribed 2 drugs which she said take about 4 weeks to take effect.She also told me to breathe into a paper bag if I start a Panic Attack. I've got a paper bag but I don't blowing in it when I'm moving round the Care home. So nobody is aware when I start a Panic Attack. If a Panic Attack gets bad while I'm in my home I'll use the paper bag which I'll keep in my bedroom. If I'm out I can't use it.

Tuesday, November 25, 2008

My Life being Disabled 25/11/08

Because I didn't have a good experience in hospital I decided to complain. I Emailed the patient liaison team and reqested the Email addresses of Complaints manager and the Cheif Executive with following Email.

On Thursday 13/11/08 at around 13:00 I was suffering from breathing problems and a bad headache. The nurse at my care home took the following action. After speaking to my doctor, the nurse phoned 999 to call for an ambulance. I was taken to Barnsley Hospital with my Hospital Transfer Form. This document provides hospital staff with all relevant details of my needs. I was taken into A & E, had a brain scan and Ward 20. In this time the document went missing and nobody felt it was useful. Although it contained all my medecine information. The outcome of this was:-
a) I forgot that I had bladder washes and on Monday my catheter was by-passing and required to be changed. I got it changed on Tuesday and suffered with wet beds for two days ! (If I had been at my care home it would have been changed by one of the nurses). b) I use 4 different creams, Athelete's foot, catheter entry, legs, groin which were not used whilst in hospital.
c) I have dermititus especially on my head and need a shower/bath every day. While I was in hospital I only got one bath.

On Friday I was told that I have MRSA and that I it had before I came in. I should have been seperated with my own rooom but you did not have one until Thursday 20/11/08. On Friday my severe migrains had stopped.

On Monday I was discharged only to be informed that because there was a lot of sickness and diarrheo on the ward I couldn't go home. Eventually I went home on Saturday 22/11/08. Because I was staying longer I decided to purchase a card to allow me to watch television. BUT there is nobody who works at the hospital who can buy one. It is your policy to NOT deal with patients money.

On Wednesday I ran out of clothing so I contacted my care home and they came to see me on Thursday. They brought me my powerchair to allow me to move around but on Thursday afternoon I was put in a room by myself. They bought me a card so I could watch television and I had these problems.
a) every screen I used (3, on ward, big room and room 13) the headphone socket was loose and the sound was poor.
b) room 13 the telephone does not work.

It was your fault that I could not go home therefore you should pay my expenses which are:-
a) trolley £3.70
b) television/telephone £10

TOTAL £13.70

I received this acknowledgement

I acknowledge receipt of a copy of the complaint sent to Sandra Taylor and Julian Harris I am sure that this will be investigated and responded to under the terms of the NHS Complaints procedure. Should you require any futher assistance please do not hesitate to contact me.

I also received this acknowledgedment from the cheif executive

Thank you for your e mail complaint. I am very sorry to hear of your experience and will ensure that your concerns are investigated thoroughly. As soon as this is completed I will ensure that I respond formally and within the required timescales to the issues you outline.

Yours sincerely,

Monday, November 24, 2008

My Life being Disabled 24/11/08

After my last BLOG I have been in hospital, since Thursday 11/11/08, suffering from migraines but while I was in the doctor diagnosed I had 'PANIC ATTACKS' probably 'SPONTANEOUS PANIC ATTACKS'. I realised that I have been suffering from these since I had my stroke in March 2003.The doctor could not cure me because he deals with Strokes but he recommended that I see my GP. I was discharged but the ward was isolated because of sickness and diarrhea and I didn't leave until 22/11/08.

This morning I read about Panic Attacks on the web and the cure is to eliminate Panic Attacks symptons by addressing the underlying cause, the anxiety itself. In my case is BEING DISABLED ? Reading on it says I might be suffering from Generalised Anxiety Disorder which is Sufferscof GAD feel anxious most of the time their bodies anxiety thermostat has become reset at a much higher level. I am due to see my GP on Wednesday but already I feel much better.

This afternoon I went to the library and change my book to Amid Khan biography and I turned my powerchair so it went much faster.

Tuesday, November 11, 2008

My Life being Disabled 11/11/08

On Saturday I went on my computer in the morning and I watched Rugby in the afternoon. On Sunday I watched television all day. On Monday I stayed in bed all day because I had a very bad headache.

Saturday, November 8, 2008

My Life being Disabled 08/11/08

On Thursday afternoon I spent the afternoon watching a video about World War 2. After dinner I watched television until 22:30. On Friday I stayed in bed because I had a headache again. I was suppose to go to the cinema to watch the new James Bond film but I didn't go. Some other residents went and they said it was a good film.

This morning the Life Skills co-ordinator told me he would take me to the cinema later. I booked a seat at the restaurant for our Xmas lunch. It's called The Marquis and it is booked for 09/12 from 12:00 to 15:00.

Thursday, November 6, 2008

My Life being Disabled 06/11/08

On Monday night I was feeling poorly so I went to bed at 21:00 but I didn't get to sleep until about 03:00 and I didn't awake until 10:30. I felt sick so I stayed in bed all day and all night but I didn't fall asleep. On Wednesday at 05:00 I had a very bad headache and at 06:00 the nurse gave me some painkillers but it would not go so she called my doctor because I sometimes suffer from these. The doctor came at 12:30 and he decided I had a cold so he prescribed some other tablets. I can take these every 4 hours, if I want to. On Thursday I woke up at 08:15 and decided I need a shower so I got up.

Monday, November 3, 2008

My Life being Disabled 03/11/08

My physiotherapist did not see me on Friday afternoon but I don't know why. On Saturday England were beaten 52 -4 by Australia in the Rugby League World Cup. I got up at 08:15 this morning and after breakfast I came into the computer room. I got a letter from my councillor this morning saying the Post Office were closing more Post Offices in Grimethorpe but she is trying to stop them.