My Life being Disabled 27 & 28/02/08

My Social Worker phoned this morning to arrange to see me on Monday 03/03/08 at 14:00.My shower that has been faulty since Friday was fixed this morning. Yesterday I couldn't get into the computer room because the corridor was being painted. I got weighed this morning and I weighed 87.4 kgs and my blood pressure was 140/88

My Life being Disabled 26/02/08

This morning I had my catheter changed. It is the first time it has been routinely (8 weeks) changed for over a year because usually it's changed when it becomes blocked with grit from my bladder.

My Life being Disabled 24 & 25/02/08

Yesterday I played with my computer and read my book. Today(Monday) the new life skills co-ordinator took me to the library, told me who was taking me to the Carnegie Club Challange Final at Elland Road on Friday, I could start going to the Fitness Centre again and told me I could go to Cleethorpes on Sunday.

My Life being Disabled 23/02/08

This morning I didn't get a shower because the drains from the shower were blocked. Yesterday when I had a shower the carpet in my bedroom was wet through. I tried to go in the bath but it is too small for my extended paralysed leg. Once this leg becomes relax I can't fit in the bath. I have raised it at the resident's meeting but it has never been resolved. Tomorrrow I'm having a shower but in the communial bathroom.

My Life being Disabled 22/02/08

I didn't get up 09:30 then when I came out of my shower I found that my shower had not been draining. My carpet in my bedroom was soaked ! My carers have reported it to the plumbers.

My Life being Disavbled 21/02/08

I went to Cottonwood, the local place to go shopping, this morning. Firstly we went to Argos and I bought some ankle weights to strengthen my leg muscles. We went to McDonalds for our lunch then we went to Morrisons to buy my toiletries. I also bought some blank CD's so I can download music. When we got home the senior physiotherapist ask me to go on their new plinth. She advised her assistants what excercises I could do with my legs and she will put it in my Care plan. At dinner time one of the women residents started hitting another one. Although the carers stopped it they didn't report it ?

My Life being Disabled 20/02/08

I phoned Wheelchair Services this morning to find out what is happening with my moulded seat, my indoor powerchair and my wheelchair. They told me my moulded seat and my indoor powerchair were ready but my wheelchair isn't butvwhen it is they'll make me an appointment. I passed this on to my Social worker.

My Life being Disabled 19/02/08

I met with Remploy this afternoon. They are getting me some job experience. But, so far, they can't find an organisation but they thought my specification was only Communication but my original specification was Computers or Communication and I expanded this to include Call Centre work. We agreed that Remploy would give me feedback every week on what they are doing.

My Life being Disabled 18/02/08

Very boring weekend. I phoned Remploy this morning because they said they were meeting me last week but it never happened. Today they said they will meet me tomorrow at 14:00 to discuss my work experience. My physiotherapist didn't attend today and she didn't attend on Friday

My Life being Disabled 15/02/08

I got a reply from the manager of my Care home about my complaint. It read "I am in receipt of your letter that you are not receiving your 3.5 hours of activities per week. Your nurse is going to update your Care plan regarding your social time. We are going to document this for two weeks from 04/02/08 - 17/02/08 so we can ensure that the correct levels of therapy time is being used." I got my tickets for the World Club Challenge between Leeds Rhinos and Melbourne Storm on 29/02/08 at 19:30 in Elland Road, Leeds.The physiotherapist didn't give me my execises today.

My Life being Disabled 14/02/08

We had a Valentine's Day party this afternoon and we used it to bid farwell to the life skills co-ordinator who is leaving tomorrow.

My Life being Disabled 13/02/08

The only item to blog today is the physiotherapist came to do my excercises on my paralysed arm.

My Life being Disabled 12/02/08

We had a Resident's meeting this afternoon. The items on the agenda were:- Carried over from the last meeting, Domestics, Carers, Nurses, Administration, Management, Life Skills and Any Other Business. We discussed the process for getting clean towels, leaking showers, putting clothes back after they've been to the laundry, new life skills co-ordinator, expressing our thanks to the life skills co-ordinator who is leaving, residents holiday and the use of our mini-bus after March.

My Life being Disabled 11/02/08

I saw my Social worker this morning and we met with my nurse and the new life skills co-ordinator. We agreed that the life skills co-ordinator would take me to the fitness centre every week and would take me to the 2008 Carnegie World Club Challenge on 29th February at 19:30. This is held at Elland Road Leeds. The new Life Skills Co-ordinator starts on 18/02/08 and we'll discuss my visits to the Fitness Centre then.My Social worker told me the decision to allow me to stay at this Care home is still undecided. I booked my tickets for the World Club Challange and it only cost £17 which included my place, my carers seat and a parking space.

My Life being Disabled 10/02/08

After a very boring Saturday when I went for breakfast my nurse asked me if I wanted to go out for a Sunday lunch ! At 11:30 4 residents, a life skills co-ordinator and 3 carers went to a pub called The Norman Inn at Monk Bretton. I had my usual lunch from the Curry Club menu, Chicken Jalfrezi, Rice, Naan bread, Popodoom and chutney plus a drink J20 for £4.95. Everyone enjoyed their meal and the pub was very busy with people going out for Sunday lunch. We also called at Asda and Comet on the way home.

My Life being Disabled 08/02/08

Every Friday I get my haircut by my carers. I got an email from South West Yorkshire Mental Health NHS Trust about the assessment I did on Monday. I asked for a copy and she sent me an email of the form I have to complete(Data Protection Act 1998). My physiotherapist did my exercises on my paralysed arm.

My Life being Disabled 07/02/08

My Social worker phoned this morning and we arranged a meeting on Monday 11/02 at 11:00m to discuss my future. The physiotherapist finished my Care plan on my stiffness in my paralysed right arm and what she is doing to ease this(Care Plan Number 12).

My Life being Disabled 06/02/08

Went to the library at 11:00 changed my book from biography "coleen" to biography "cash" which is due back on 27/02/08. In the afternoon I went to the computer room to use the internet. My physiotherapist did my paralysed arm excercises and said it is getting easier.

My Life being Disabled 05/02/08

I phoned Janet White from Remploy this morning to find out if she has an organisation who will provide me with some job experience. She has been in touch with several and is waiting for them to get in touch. She's planning to come and see me next week. From 13:30 until 14:00 we had a keep fit session with our physiotherapist. At 15:30 I went to the residents meeting but at 16:00 I found it was cancelled and rescheduled 12/02/08 at 15:30.

My Life being Disabled 02/02/08

A boring day, the local Rugby League match was postponed. Some residents went to the Social club but no-one went in a wheelchair.

My Life being Disabled 04/02/08

My carers woke me upat 08:00 to tell me I had assessment with a person from Mental Health at 10:15. I had a shower and had my breakfast. I met her and she told me that she had to assess me because my Care costs might be split between Wakefield MDC, the NHS and me. Afterwards I told my nurse I wanted to go to the library, I wanted some more Movicol and my "MARS" sheets are incorrect. I went for my lunch then I went to Pinderfields Hospital Wakefield to the Orthotics to get my new shoes. When I got back it was dinnertime but two of the residents from our patch "Darbyshire" had gone out for their dinner with a life skills co-ordinator.

My Life being Disabled 03/02/08

Had a bladder wash this morning because I didn't have one yesterday because my "MARS" chart said I should have a bladder wash on Sunday, Wednesday and Friday. My nurse is going to check this tomorrow. I didn't have a Movicol because my presciption is not ready.

My Life being Disabled 01/02/08

I didn't get up until 09:00, I had my haircut before I went in the shower. Another boring day. My blood pressure is 140/87