My Life being Disabled 29/09/08

On Friday some of the residents(4) went to Butlins at Skegness. I went in a disabled apartment with a nurse. After unpacking we went for our dinner and I had chilli-con-carne. After watching the television we went to the disco for a drink. It was very noisy and it was packed out but we just got a table. I stay until 22:45 but I was tired so the nurse took me back. When I got in my bed I realised it wasn't adjustable so I would have to sleep without any support for my back and my neck. I woke up at 02:30 with a pain in my paralysed side and ask my nurse for some painkillers. I could not go to sleep again and the pain got worse. At 05:15 I called my nurse again and told him that I felt rotten. He decided to get a carer to move me onto my side. When they tried to move me the pain got worse. The nurse called the security office who sent someone to see if they could help. Everyone decided that they should call an ambulance. A paramedic arrived and took my blood pressure, ECG and other tests and decided to get an ambulance to take me to hospital. I was taken to Boston to the Lincolnshire hospital. It took 30 minutes to get there but during that time the pain got a little better. It was 07:00 when I was put in a bed in the A&E and a doctor came to examine me. Although she couldn't find anything wrong with me she said I should have some X-Rays. They gave me some more painkillers but at 11:00 they decided that since the pain is getting better I should go home. I told them where I was staying but they said I would be better going to my nursing home. They didn't have a contact number for my nurse but I gave them a number for my nursing home. They prescribed some painkillers.
At 12:00 they decided to move me to the observation ward and at 13:00 my nurse came to take me home.

I stayed in bed on Saturday and Sunday but I only took one painkiller.

My Life being Disabled 24/09/08

This morning Remploy phoned to tell me they think I can start my Work Experience on 06/10/08 but the taxi firm can't take me home at 15:30 because of other commitents so tey will take me home at 14:30. Later I am seeing the doctor about my creams. At 15:30 the dentist is coming out to give me a check-up.

My Life being Disabled 20/09/08

On Thursday I went to the library and I changed my book for Peter Lorimer's autobiography. We tried to visit an exibition about Spanish food but my wheelchair was too big to get in through the entrance ! On Friday the chiropidist visited our Care home and she cut my toenails. We have to use a chiropidist because our Care home manager says so and she charges £19 to cut my toe nails.

My Life being Disabled 18/09/08

This morning after my bladder wash I asked my nurse if I could go to library. She said I could. On my computer I am trying to find my Great Grand parents.

My Life being Disabled 17/09/08

This morning I phoned Remploy to find out what is happening to my Work Experience because 3 weeks ago I went to Northern College and they said they would give me 30 days of Work Experience. They have been in touch with Remploy to tell them they are looking for an offfice with a desk that is suitable for me.

My Life being Disabled 16/09/08

Over the weekend I used my computer, read my book and watch television. Yesterday I went out to get some money because the chiropidist is coming on Friday at 10:30. I went to the ATM near the Co-op which is the nearest one. We went through the park but on the way back we came down a busy road near the church. I should have seen my physio but because we went out I missed her. This morning she asked me if I was available this afternoon.

My Life being Disabled 12/09/08

Yesterday I went to Nettos to buy some mints.
Today I'm using my computer all day.

My Life being Disabled 10/09/08

Yesterday I went to Meadowhall shopping for some clothes to go on holiday. I bought some trousers and a suitcase. We had our lunch at Harry Ramsden's in the Oasis. We spent most of the day in Meadowhall but before we went we had to take some clothes to a resident who had to go to hospital.

My Life being Disabled 06/09/08

I was weighed on Thursday 90.6 kgs and my blood pressure was 122/80. I spent most of Friday & Saturday reading my book. The life skills co-ordinator asked me if we could change the day we go to Meadowhall to Tuesday. I am going to review my Care plan this afternoon

My Life being Disabled 04/09/08

This morning I emailed the representative from Remploy of my proposals of what I am doing when I start Work Experience.

I have spoken to my nurse and we have decided that on Mondays, Wednesdays and Friday when I go to the Northern College for work experience it will be easier for all people involved to follow this procedure:-
1. I get up at 08:05.
2. Clean my teeth, shave and shower.
3. Get dressed and hoist me in my powerchair.
4. Cooked breakfast and medicine.
5. Ready and downstairs at 10:00.
6. Taxi to Went Worth Castle by 10:30.
7. Taxi from Went Worth Castle at 15:30.
8. Return Dearnevale 16:00.

The Work Experience will last for 10 weeks and the starting date has yet to be decided.

I also arranged to go to Meadowhall to get some new clothes next Wednesday.

My Life being Disabled 02/09/08

I went to the library yesterday afternoon and changed my book to Laid Bare by Gail Porter. Last night I asked to go to bed at 21:45 but it wasn't until 23:30 when I finally got to bed ! I slept all night until 07:00 when I woke up because my day bag was full. I realised that the nurse hadn't put my night bag on last night. I called my carers to empty my bag.
I found out this morning that ITV are filming in my Care home today.

Later on one of the Life Skill Co-ordinators asked me if I wanted to watch Jamie Oliver on 13th September. Somebody has sent us some tickets

My Life being Disabled 01/09/08

On Saturday I watched the Rugby League Challenge Cup between Hull and St Helen's. It was a good match and St Helen's won 16 - 28.
This afternoon I've arranged with my nurse to go to the library.