My Life being Disabled 30/11/10

Yesterday afternoon my Social worker phoned me to clarify that we are having a review meeting at 14:00 on 09/12/10. Last night before I went to bed it was snowing and laying. This morning I woke up at 06:00 and asked my carer to put on the heating in my room. He said he put it on when he emptied my night bag at 04:30. At 08:15 I called for a carer and asked for the nurse to wash my bladder out. I have to wash my bladder out because I use a catheter and my bladder get crystals in and blocks my catheter. At breakfast one of the lifeskills co-ordinators ask me if I wanted to go to The Priory Campus (http://www.priorycampus.co.uk). I said I wanted to go. When I checked my Santander account it said it was unavailable.

My Life being Disabled 29/11/10

This morning I awoke at 05:00 to ask the carers to put my heating on. I watched television until I fell asleep again. When I got up and had a shower, it was freezing in the bathroom, I went to the dining room where the nurse took my blood/sugar level. It was 7.3 and I noticed it was snowing and it had laid. One of the carers told me the temperature was 1'C outside. After breakfast I went to the computer room and noticed somebody had taken £10 out of my bank account. I phoned Santander and explained to the Customer Service receptionist what had happened. She told me that someone did this at Barnsley on Saturday. I was put through to the Fraud Department to investigate further. The block my account and I asked about my mobile cost, which was £12.95. They put me back to thr customer service and they put £10 into my account.

My Life being Disabled 28/11/10

Yesterday afternoon because it was a resident's birthday we had a local group in who sang their own songs. There were 6 members, drums, keyboard, 3 guitars and a singer. One of the group was the daughter of our head nurse. This morning at 04:00 because it was very cold and I asked a carer if they could put my heating on. On the news it was reported that in Newcastle the temperature was -17'C overnight.

My Life being Disabled 27/11/`10

Yesterday morning I went to the Opticians to have my eyes tested. I had them tested 6 months ago when I was told I had diabetes but the Optician told to come back in November. He tested my eyes and compared them with the results from 6 months ago. He said they were very different and now he prescribed some different glasses. He said my reading glasses were a bit strong but I didn't have to change them. I picked a new pair of glasses which cost £24 because I have the benefit of having free prescriptions, free dental care, free sight test, vouchers to reduce the price of glasses and free wigs but you have to apply every year using HC1 form (Health Costs).

My Life being Disabled 25/11/10

Yesterday afternoon I made 5 portions of Chilli-con-Carne. I usually make 4 but because I had some left I gave the carers a dish full. They thought it was very good and I had one for my tea.
This morning I had my bladder wash before I had a shower, got dressed and went to the dining room for my breakfast. After breakfast I went to the computer room where I finished my list of Rugby League fixtures that I wanted to go to next year. I asked a carer to take it to the Skills. Later on, one of the Skills came to see me to tell me that they were busy on two dates but the rest were O.K.. These were Hull FC 08/04/11
Bradford 21/04/11
Hull KR 15/05/11
Bradford 12/06/11
Leeds 24/06/11
Castleford 10/07/11
Wigan 19/08/11
Warrington 31/07/11
Manchester 08/10/11

The nurse came to see me to remind me that I have an appointment tomorrow with Moorhouse Opticians in Cudworth and we'll have to set off at 10:30.

My Life being Disabled 24/11/10

Yesterday morning I went to Morrisons to buy the ingredients for Chilli-con-Carne, some pizzas chocolate and some wine gums. We came home at 14:00 and I had lunch. This morning I woke at 05:30 and asked the carers if they could put my heating on because it was very cold. After my breakfast I finished the list of Rugby League fixtures I want to go to next year (11). I started changing my passwords because I got a warning that somebody was trying to use my profile.

My Life being Disabled 22/11/10

This morning I asked a carer to check with Skills if they had me booked in to make some more Chilli-con-Carne. My blood/sugar level was 8.3. When I went on the internet I got an email from Bradford Bulls telling me their fixture list for next year. I intend to book some dates so I can go to see them. The nurse told me I've got an appointment with the optician on Friday 26/11/10 at 11:00. Somedody from Skills told me I can make some Chilli-con-Carne on Wednesday afternoon and we're going to Morrisons tomorrow afternoon

My Life being Disabled 21/11/10

Yesterday afternoon I told the carers that I wanted my last Chicken Jalfrezi for tea today and it was frozen in the resident's therapy kitchen. I asked them to take it out to defrost. This morning I checked that it was defrosted but the carers couldn't find it. I was weighed this morning and my weight was 93.6 kgs, 14 st 10 lbs. For tea I decided to have only ice-cream.

My Life being Disabled 20/11/10

Yesterday afternoon I asked the nurse if I could have an appointment to see the opticians. The last time I went the optician told to come back in 6 months time when my blood/sugar levels were stable. I had just been diagnosed of diabetes. I asked the nurse when my weight is taken she said on the 24th of the month. This morning one of the carers told me that before this nursing home was built the pit manager lived here. He was called Lockwood.

My Life being Disabled 19/11/10

Yesterday afternoon Johnathan, a singer, came to entertain us. He was quite good and he sang songs from the 60's. I recieved my three books from Amazon they were all from the writer Stieg Larsson.
This morning I asked a carer to ask the skills if I could cook some more Chilli-con-Carne.

My Life being Disabled 18/11/10

Yesterday afternoon my eldest son came to visit me. He is the manager of Havana Bar, Club and Lounge, in Wakefield (http://www.havanabar.co.uk/ ). We watched Australia lose to New Zealand.
This morning I emailed TOTALLYfreewills in reply to a letter they sent with my will asking me to read and sign it. I read it found two mistakes. I read an email telling me that the Bradford Bulls new shirts are out on Saturday 11/12/10 and I am going to buy the away shirt which is purple.
This afternoon 'Johnathan' is going to entertain us, I think he is a singer. Next week 'Bedlem' is going to entertain us.

My Life being Disabled 17/11/10

Yesterday afternoon I did my exercises and watched a film on television. This morning I answered several emails from Facebook requesting me to be friends.

My Life being Disabled 16/11/10

Yesterday I got a reply from PALS at Barnsley saying that they were still dealing with my complaint. This morning I answered several emails from Facebook asking me to be friends. I read that the Bulls' new half back Marc Herbert arrives this Thursday from Canberra Raiders.

My Life being Disabled 15/11/10

Yesterday teatime I had one of my Chicken Jalfrezi's. Last night the nurse gave me two sennas.
This morning my blood/sugar level was 7.8. When I went to the computer room I ordered 3 books by Stieg Larson titled "The Girl with the Dragon tattoo", "The Girl who kicked the hornets nest" and "The Girl who played with fire". I sent another email to PALS at Barnsley about my complaint on the 27/08/10 where the NHS wasted my time and their resources by giving an appointment to have my teeth X-rayed but when I got there they didn't have a hoist to transfer me into a chair on the X-ray machine.

My Life being Disabled 14/11/10

On Friday afternoon I went to Nettos and bought some shower gel, mouthwash, kitkats, some dark chocolate and wine gums. At 14:00 we had a residents meetings and from this I got Xmas fair on 11/12/10 13:00 and date of the next meeting 22/12/10 14:00. Yesterday afternoon I went to the Xscape to see SAW 3D. We set off at 13:30 because the movie started at 14:30 and some other residents were going to a Chinese restaurant. We got to Cineworld at 14:20, paid £9.10 to get in and paid £0.80 to buy 3D glasses. The movie was very good but the 3D effects were not. My carer had to pay as well because my Cinema Exhibitors Association card had run out and the skills people had not sent for a new one. The CEA card costs £5.50 per year and allows my carer to get in the pictures free. It was very busy at Xscape and we got home at 17:00. Last night the nurse gave me one Senna ?

My Life being Disabled 12/11/11

Yesterday lunchtime we had Fish and Chips from Woody's in Barnsley. I enjoyed them because I had Haddock fillet and proper chips. I did my exercises and watched SAW 6. Last night the nurse gave me two sennas and before I got up my bowels opened. After breakfast I went to the computer room and sorted my email. I got a letter, this morning, from totallyFREEwills with my will for me and two witnesses to sign. I asked a carer if I could go to Nettos to get some mouthwash and some shower gel.

My Life being Disabled 11/11/11

Yesterday afternoon after my exercises I watched SAW 4. In the evening before The Apprentice I started watching SAW 5. This morning I had my bladder wash before I was put on the toilet. Again nothing but I've got an appointment with the doctor to find out whether what Sennas do and should I take one or two. I saw the physio, this morning, we agreed that I've lost 2 stone and my wheelchair doesn't fit me anymore so he's going tell wheelchairs services at Sheffield. At lunch we're having Fish, Chips and Mushy peas from Woody's in Barnsley.

My Life being Disabled 10/11/10

Yesterday afternoon after I did my exercises, which takes me 1 hour, I watched SAW 3. This morning after breakfast I updated my Facebook and wrote my blog(blogger:my life being disabled).

My Life being Disabled 09/11/10

Yesterday afternoon I got the DVDs that I had ordered from Amazon and a letter from Pinderfields hospital telling me I've got an appointment on 16/12/10 at 15:00 for my Baclofin pump filling up. Later we had a quiz then I watched SAW 2. In the evening the nurse told me I couldn't have two senna because I was prescribed one.
This morning I was sat on the toilet, as usual, nothing happened so I asked the nurse if I could see the doctor. I checked on the times of SAW 7 and at Castleford on Saturday 13/11/10 it is 14:30.

My Life being Disabled 08/11/10

Yesterday afternoon I went to Nettos and bought some Naan bread, Kitkats, wine gums and some chilli. I plan to have the chilli today for tea.
This morning my blood/sugar levels were 8.9 and I asked the nurse to increase my sennas to two every night because I only got one last night. I told Skills that I wanted Haddock on Thursday when we have a British day.

My Life being Disabled 07/11/10

Yesterday at 04:30 I watched England beat Papua New Guinea 36 - 10. The quote of the year was when Luke Robinson dislocated his elbow "I tried putting it back on pitch but it wouldn't go in so I had to come off". Afterwards I watched New Zealand lose to Australia 20 - 34. Last night the nurse didn't give me any Sennas, the night before I got two and the night before I got one? This morning I asked the nurse what the doctor had prescribe me which was two pills at night before I go to bed. For tea I'm having one of my Chicken Jalfrezis and a Naan bread which I'm going to get from Nettos this afternoon. I've asked a carer to put an entry in the diary the my splint is causing some problems because the straps are coming loose. I'm worried that this government are going to reduce my benefits because on the news I've seen stories about unemployed people have to "work" for no pay but it does not say whether this covers disabled people as well !

My Life being Disabled 05/11/10

Yesterday I stayed in bed because I had stomach ache. I decided to eat no food and drink water. I watch the television all day and most of the night. I didn't sleep much last night. Since I changed from Movicol to Senna, to form my stools correctly, I get stomach a lot.

My Life being Disabled 03/11/10

Yesterday afternoon I saw the Life Skills people and we agreed that I could change the date to see Hairspray to 08/12/10. I could go to the cinema to see SAW 7 on the 13/11/10. I can go to Dorbren House for lunch tomorrow. I have ordered my fish, chips and mushy peas for 11/11/10.
This morning because I have bought the DVDs for SAW 1 - 6 and are going to watch SAW 7 in 3D I researched what the theme was.

My Life being Disabled 02/11/10

At lunchtime yesterday I asked to talk with the Life Skills people because I'd got a letter from the NHS Care Homes Department asking to attend a review meeting at 14:30 on the 01/12/10 but I'd arranged to go to see Hairspray that day. I also wanted to ask if I could go to see the movie "SAW 7" which is 3D and I wanted to go to Dorbren House for lunch on 04/11/10. Also on 11/11/10 I would like Fish & Chips. In the afternoon I attended my physio who worked on my right hand in hot water. In the evening my nurse ask me to review my Care Plan which I did and provided an update.
This morning I asked the carers if they will ask the Life Skills to see me. I bought the SAW 1-6 DVDs on Amazon.

My Life being Disabled 01/11/10

On Saturday morning I watched New Zealand beat Papua New Guinea in bed because it started at 07:00. I got up 09:30 sat on the toilet etc....and watched television. In the afternoon I made some Chicken Jalfrezi. I made 3 portions and ate one for tea.
On Sunday morning I watched Australia beat England in bed because it started at 07:00 and the clocks had gone back. In the afternoon I went to Nettos to buy some wine gums, shower gel, pitta bread and chilli. For tea I had chilli which was very hot.
This morning I had my blood/sugar level taken and it was 7.6. In the computer room I opened a savings account.