My Life being Disabled 30/05/08

Yesterday after having my bladder wash I began feeling pain in my right. This was most unusual because my right side is paralysed ! The pain started in my face, round my mouth, then down my arm and my leg. The nurse was with me and she said I should stay in bed for 30 minutes. But when she came back the pain was still there. She was going to call my doctor.
Later on she came to tell me my doctor had called an ambulance. At 12:30 the ambulance came and took me to the casualty department at Barnsley hospital. The nurses took my temperature,blood pressure and I had a EGC with everything O.K. After a hour the pain had become pins and needles. At 15:15 the doctor came and I told her what had happened. She was going to talk with my neurologist. When she came back she said it could be my nerve endings working again after 5 years. She told me to speak with my GP and he will prescribe something to null the pain. I got home just in time for dinner.

This morning after breakfast I decided to phone the conctrators who are delivering my powerchair. It was suppose to come at the end of April. When I asked they said it will be delivered on Monday ! I told my nurse.

My Life being Disabled 28/05/08

Yesterday my nurse reviewed my Care plan with me and the changes we made were :-
Care plan 3 Supra pubic catheter to be changed every 8 weeks
Care plan 4 Bath Named Nurse and Key Worker to try and find out information about Mick having a bath that Mick can fit in.
Care plan 8 HC2 form, Mick has registered with a HC1 NHS for the benefits decribed on the HC2 but this MUST be completed every year.
Care plan 11 Activities, to include the list of activities I gave to the life skills co-ordinators.
Care plan 11 Activities, to try to get Mick out in the fresh air more.

Today, after lunch, a life skills co-ordinator took me out to the lake which is about 1 mile away from Grimethorpe. Although it had just been raining it was very warm. We walked around the lake but we had to turn back because the footpath was very slippy on the hill. We went to Nettos where I bought some deodarant. We got back at 14:00, it was nice to go out and get some fresh air. The life skills co-ordinator said we'll go out again this weekend but we'll go to the other side of the village.

My Life being Disabled 26/05/08

I went to the computer room after breakfast and I loaded DIVX, Real Player and I reapplied to the Dell Support Centre with Model: INSPIRON 1720, Service Tag: BM9QB3J, Express Service Code: 252-912-055-51. Everything went well. The physiotherapist was working even though it is a Bank Holiday.

My Life being Disabled 25/05/08

Yesterday I didn't get my breakfast until 11;30 because we only had two carers with a nurse. Usually we have four carers. After lunch my catheter began by-passing again and when the nurse investigated she found a lot of truama(blood clot) in my urine. She decided to change my catheter even though it was changed last Thursday when I had a blood clot in my urine. After my catheter was changed I decided to stay in bed until dinner time. After dinner time I watch television in the cinema lounge.

This morning I got up at 08:30 and after my breakfast I went to the computer room at 10:30. When I was inputting my blog I noticed that my computer was running slow. Sometimes it did not run on the internet. On investigation I suspected a virus from the internet so I RESTARTED my computer and loaded the Dell Factory Image again. I always keep everything in my Hotmail so I don't lose it.

My Life being Disabled 23/05/08

Yesterday I went to NETTOS to buy some shower gel.

Today I spent most of the day in the computer room.

My Life being Disabled 21/05/08

Yesterday the Disabled Employment Advisor from the Jobcentre phoned me to ask where my job experience with Remploy is going ? I told her I have to phone Remploy when my electric chair arrives but I didn't know what difference this will make because I'm not sure whether I can use it outside. She said Remploy have look into this and they say I can. I said I don't know when it will come but I'm prepared to wait.

Today I've spent most of the day in the computer room.

My Life being Disabled 19/05/08

I asked my nurse if somebody could take me to the library. A life skills co-ordinator took me in the afternoon and I changed my book to Dawn French's biography. Going to the library and coming back I noticed that the footpaths in Grimethorpe are getting worse. I've already complained to Barnsley council about the footpath outside our Care home but they have not repaired it. I filled a form to find a building society account which I had in 1975 but I lost the book for. It is called 'mylostaccount' and it might take 13 weeks.

My Life being Disabled 18/05/08

On Friday afternoon my physiotherapist had to go a Health and Safety meeting but she came later and stretch my paralysed arm and leg in my bedroom.

On Saturday I watch the FA Cup final between Cardiff v Portsmouth in the cinema lounge. I'm glad Portsmouth won because I don't know why Welsh teams can play for an English cup?

My wife came to see me today and she looked very tired. I think it is because since I had a stroke she has to work full time to pay for my Care services. Even though the National Health Services are suppose to be free ! We have to pay over £200 a week. BUT if I lived in Scotland it would be FREE. IS THIS RIGHT ?

My Life being Disabled 15/05/08

On Tuesday in the afternoon I asked my physiotherapist if she could look at the second toe of my left foot because it was paralysed. She said she would treat it and began by moving it. I completed a questionnaire from the Commission of Social Care Inspectors about my views on Dearnevale. Usually they send questionnaire out before they check on the Care home. I said I will speak to them on their visit. I also put that I can't get in any baths at Dearnvale and I am discriminated because I'm in a wheelchair.

On Wednesday we went to Cleethorpes even though I said I wanted to go to Bridlington but the Life Skills co-ordinator said the weather forecast for Bridlington was for rain. On the way I checked and the BBC said Brid Cloudy 13, Cleethorpes 12. When we got to Cleethorpes most things were closed but we parked about 1 mile away from the centre. We went to the town and found a Fish and Chips cafe had our lunch. We went to the amusements then we went back to our mini-bus. When I was getting undressed to go to bed my carers noticed my catheter bag had blood in my urine. My nurse came and gave me a bladder wash and said she would check it throughout the night.

This morning my nurse said she was changing my catheter because the last time recorded was in January. It should be changed every 8 weeks. After it was changed there was a lot of truma. I asked my carers to the Life Skills co-ordinator I wanted to go to the library but they said there isn't a Life Skills co-ordinator working today.
I got a reply from the Labour party about Care charges which I thought it was the Labour's policy but they have reffered me to the Dept. of Health :-

Harriet, An email I sent to my MP. The major thing on my mind:- Dear Jeff, I am writing to you to complain that although the United Kingdom operates a free health service. When I had a major stroke in March 2003 and when I got out of hospital I have had to pay more than £200 per week in Care charges.I have to stay in a Care home and require a nurse but in Scotland this free. I can’t understand this. Can you please explain this to me. Mick Tillotson........

Dear Mr Tillotson Thank you for your email. I suggest that you contact the DOH about this matter at: Department of Health Richmond House 79 Whitehall London SW1A 2NS 020 7210 4850 www.doh.gov.uk Regards, Ben Nicol Membership & Communications Unit The Labour Party

I raised it because it is LABOUR PARTY POLICY ! but the Communications Unit won't answer perhaps The Communist Party want a member.

My Life being Disabled 13/05/08

On Friday because it was very sunny I spent most of the day outside in the garden and read my book. On Saturday we went to Cottonwood shopping. On Sunday because it was sunny again I spent most of the day outside reading my book. I had my blood pressure taken it was 130/78.
This morning I phoned Wheelchair Services to find out if my powerchair is ready but they are still waiting for my footrests and they don't know when they will be delivered.

The government are looking into 'Care Services' and the charges. I sent a email to Ivan Lewis the minister for Care Services about charging for care services and volunteering my services. After lunch I did my exercises using my weights then I went in the garden to finish my book. The physiotherapist didn't stretch my paralysed arm and leg because she had something else to do. She said she will see tomorrow and I told her that I'm going to Bridlington on Wednesday. She said she will see me on Thursday and Friday.

My Life being Disabled 08/05/08

When I was having my bladder wash I asked my nurse when my catheter was due to be changed. She told me she will find out. After breakfast one of the Life Skills co-ordinators took me to the library. I got a book out about Wimbledon F.C., called The Crazy Gang. We went to the chemist to buy some sun tan cream as well. After lunch I went to my bedroom to do my exercise then I went in the garden to sit in the sunshine and to read my book

My Life being Disabled 07/05/08

This morning, when I was getting up the nurse told me to stop tensing the muscles on my paralysed side. I explained that I was paralysed but she said I could tense my muscles anyway. After breakfast, I ask the nurse if I could see the doctor because he comes every Wednesday. Last week he said he was going to take some blood from me. Also I was having problems with my bowels. The nurse said he came yesterday without telling me ! He said he was going to take some blood next week. I told the nurse that my reading glasses were broken and she said she will take them to the Optician's to mend.
After lunch a carer took me out for a walk to the Co-op then I went to my room and did my excercises using my weights. My physiotherapist did not see me because she was covering care duties. Because it was very sunny I read my book in the garden. At 15:45 I realised my paralysed leg was red so I came in. After dinner I went in the computer room

My Life being Disabled 06/05/08

Yesterday I didn't get up until 10:30 because it was a Bank Holiday. After lunch I went out on the patio because it was sunny. I read my book until I'd finished it. I went inside to do my excercises at 15:00 but getting out of the lift I noticed my reading glasses were broken. The screw on the frame was missing. We found it in my clothes. After dinner I watched television.

This morning it is sunny and this afternoon we are going to have a BBQ.
The person from Remploy phoned to tell me Barnsley Margistrates can not alter thier disabled toilet so I can'tbhave any work experience with them. She also requested that when I get my powerchair I should contact her to let her know.

Just had a BBQ but it was not as sunny as forecast. Hardly any residents came and there was plenty of food.

My Life being Disabled 04/05/08

This morning I woke up at 08:15 because my catheter was by-passing. I called for my carer who said she would call for my nurse. My nurse investigated and found my day bag was full and my night bag was empty. She decided to change my day bag and then I got up. After breakfast I went to the computer room ane sent an email to my MP.
I am writing to you to complain that although the United Kingdom operates a free health service. When I had a major stroke in March 2003 and when I got out of hospital I have had to pay more than £200 per week in Care charges.I have to stay in a Care home and require a nurse but in Scotland this free. I can’t understand this. Can you please explain this to me.
After lunch I went to my bedroom to read my book and to excercise then I went back to the computer room.

My Life being Disabled 02/05/08

This morning I had my haircut before I went in the shower. After breakfast I went to the computer room. After lunch I went to my bedroom to excercise using my weights then I went to my physiotherapist to stretch my paralysed arm and leg. I came back to the computer room where I finished downloading a CD for my son. After dinner I plan to go into our cinema lounge to watch television.

My Life being Disabled 01/05/08

This morning I did my excercises using my weights as well. At 14:30 I went to the computer room I answered all my emails.