My Life being Disabled 31/03/08

I went to the library this afternoon and got a book out about Sid James then we went to Nettos. Later in the afternoon my physiotherapist came but she only excersisedv my arm until the hospital does another scan for any DVTs.

My Life being Disabled 30/03/08

I've had a cold and not been very well. I just watched television yesterday. I found three hotels for Disabled people, two at Blackpool and one in London

My Life being Disabled 26/03/08

I had to go to hospital because of my paralysed swollen leg. After having scanned my leg they suspected a DVT. I came home and stayed in bed for the next two days. I got an appointment for another scan on the 03/04 13:40

My Life being Disabled 25/03/08

I didn't go on my computer yesterday. Most of the day I read my library book and it was snowing. Today it is the residents meeting at 15:00. My physiotherapist ask me if I wanted a session because I did not have one yesterday it was Easter Monday. I said yes, she excercised my paralysed leg and my paralysed arm before the Residents Meeting. At the meeting we discussed where we could go to on holiday. I volunteered to look on the internet to find siutable hotels that are recommended for disabled people who use a hoist and a shower chair. One resident would like to go to London and I said would go as well. I also volunteered to look on the internet to find places to visit on day trips because our mini-bus is available every day now. The Life Skills Co-ordinator told us management intended employing two more Life Skills Co-ordinators.

When I looked at hotels for disabled people who use a hoist and use a shower chair. I couldn't find one in London but I easily found two in Blackpool.

My Life being Disabled 23/03/08

Bored again. My Care home gave me an Easter Egg.

My Life being Disabled 22/03/08

Last night the Chiropodist came to cut my toenails. I knew she was coming but nobody told me it was today. I didn't have enough money so she said I could owe it.

My Life being Disabled 21/03/08

It's Good Friday and I spend most the day watching movies via my computer. I had a session with the physiotherapist. I read my letter from the assistant manager,again, but she quoted the second week my activities were monitored were from 11/02 to 21/02 ?? Ten days = 1 week ?

My Life being Disabled 20/03/08

I went to Nettos after lunch to get some shower gel and some cotton buds. It was a year since Nettos opened in Grimethorpe so they were having a party. I got a reply from the assistant manager about my complaint that I wasn't getting enough therapy time when I should be getting 3.5 hours/week. Her answer was they documented it for two weeks and for the week commencing 03/02 it was 5.75 and for week commencing 10/02 it was 4 hours.

My Life being Disabled 19/03/08

I spoke to my nurse this morning and she is going to have my Care Plan review today or tomorrow because she is absent for 9 days then. This afternoon I had a session with my phsiotherapist and she said my paralysed arm and leg were much easier to handle. I had my Care Plan review after dinner and I questioned Part 7 tissue viability - the ointment that I use for my face causes my skin to go red. My nurse advised me to use Dipro instead. Part 11a to document my activities for 2 weeks, what is the outcome ? Part 11 I got a letter from the Life Skills Co-ordinator asking if there is anywhere I want to go or anything I want to do after Easter and was this part of my Care Plan ? She said it was because he had just been made my Life Skills Co-ordinator. Part 11a what was the outcome of this "to document my activities for two weeks from 30/01. She was going to ask the assistant manager.

My Life being Disabled 17/03/08

This morning I went for my appointment with the Occupational Therapists at Pinderfields. They assesssed my splint and decided to renew it because my hand was more flexible. I told them that I was seeing a physiotherapist who was excercising my paralysed arm and leg. They said I must monitor my splint and let them know if it doesn't fit. I told my physiotherapist what they said and she was pleased. The handyman told me that the computer room was closed tomorrow because the are modifying the desk that I use to enable me to get my legs under.

My Life being Disabled 15/03/08

Today to relief the boredom I decided to draw a family tree. Looking on the intranet I found that 'Genes Reunited' do one.

My Life being Disabled 14/03/08

Used the T-Roll again last night and it was O.K. I asked my physiotherapist if I could extend my usuage for more than 1 hour but she said to leave it for the moment. Also, last night, my nurse had to lock me into my room because another resident keeps trying to get in other residents rooms. She suffers from 'short term memory loss' but I can't move from my bed so the staff must lock me in my room.

My Life being Disabled 13/03/08

I used the T-Roll last night for a hour. A female (Janet White) from Remploy phoned to tell me Barnsley Council are meeting today and will decide if they have a place to give me some work experience. Barnsley magistrates are still dealing with my request but because her father's died she probably won't phone me next week.

My Life being Disabled 12/03/08

When I had my excerise session with my physiotherapist she gave me a T-Roll positioning roll to try when I go to bed. I should use it for the first hour. The T-Roll is used to control position of the body in supine lying. Also I must support the feet to relieve pressure at the back of the leg.

My Life being Disabled 11/03/08

Somebody else from Remploy phoned me asking me if I was interested going on a training course run by BT in Doncaster. I said I was interested but they should consult with my Care home as well.

My Life being Disabled 10/03/08

I went to the library and changed my book today. My new book needs changing by 31/03/08. I got a letter telling me I have an appointment at Wheelchair Services on 02/04/08 10:00 to get my moulded seat, my indoor powerchair and my wheelchair. Remploy phoned me to tell me they are sending my CV to the Magistates Court because they are interested in providing me some work experience.

My Life being Disabled 09/03/08

bored

My Life being Disabled 08/03/08

I got a letter from the life skills co-ordinator telling me he's on leave for two weeks but asking me to give him details of where I want to go. I want to go swimming, the Thackray Medicine Museum in Leeds, to watch Huddersfield v Bradford at rugby league on 6th July and to watch the Rugby League Cup Final at Wembley on 30th August

My Life being Disabled 07/03/08

This afternoon I went to the dentist to clean my teeth. Although my appointment was at 15:30 my nurse told me to be ready at 12:00. The ambulance came at 15:00 and I was back at 16:20. This morning I had a bacon sandwich because I had to be ready by 12:00 and for dinner we had bacon sandwiches ! The peson from Remploy phoned me to tell me she is dealing with my search for employment. On 19th February she told me she wouldphone me every week but this is the first time she's phone me. She's been in touch with BT trying to get me work experience working from home

My Life being Disabled 06/03/08

This afternoon I went to Pinderfields hospital for my appointment to fill my Baclofin pump. It has to be filled every 5 months. The ambulance came at 13:10 but my appointment was for 15:30 the driver had my appointment as 14:30 ? When we got there at 13:50 the nurse in charge told me to go to a bed in Ward 1. The doctor came and filled my Baclofin pump and told me it would run-out on 17/08/08. The nurse in charge gave me my next appointment which was on 14/08/08.

My Life being Disabled 05/03/08

I didn't get up until 10:00 today. This afternoon I had an excercise seesion with my physiotherapist.

My Life being Disabled 04/03/08

I phoned my Disabled Employment Adviser this morning to complain that the person from Remploy has not contacted me since 19/02/08 when she told me that she will phone me every week to tell me what progress she has made in her search for an organisation who will give me some work experience. My DEA was interviewing and I left her a message. I had a excercise session with my physiotherapist this afternoon because I'm at the dentist on Friday. The life skills co-ordinator asked me to join in a lottery club where we pay £1 per week, pick 6 number and the first person who's number are picked in the lottery wins. My DEA phoned back and I told her I wasn't happy with the woman from Remploy. My DEA said she would speak to her manager and let me know the outcome.

My Life being Disabled 03/03/08

I went on the plinth for my physiotherapist who excercised my paralysed arm and leg. Because I'm going to my dentist on Friday and going to the hospital on Thursday we agreed to have my sessions on Tuesday and Wednesday this week. My Social worker called for me to sign my Care Plan with Wakefield MDC.

My Life being Disabled 02/03/08

I got up at 06:30 this morning because 4 residents, 2 carer and the life support co-ordinator were gonig to Cleethorpes. We set off at 10:30 and arrived for a pub lunch at 12:00. We went to Cleethorpe market then we went for a walk down the front. We had a cup of coffee then we walked back. It was quite warm and sunny. We got back at 17:30.

My Life being Disabled 01/03/08

I reviewed my Care Plan today with my nurse but the only item we changed was in my activities where we changed from "going to the Fitness Centre every Wednesday" to "because I've bough some weight my Carers to assist me with them everyday.

My Life being Disabled 29/02/08

At 17:30 I went to Leeds to watch the Carnegie Club Callenge Final between Leeds Rhinos and Melbourne Storm at Elland Road. It took us a hour to get there and we parked in allocated, disabled parking space opposite the stadium. We were sat in the East stand close to the try line. The weather was appalling and even though we were under cover we got soaked. It was a great game of Rugby League and Leeds won 11 - 4. There was a great crowd of about 35,000