My Life being Disabled 30/09/07

Woke up at 08:20 because I thought I was by-passing but I hadn't a night bag and my day bag was full. I called for a carer who emptied my bag anhd hoisted me into my bathroom. There I cleaned my teeth, shaved and had a shower. After dressing I went to the dining room it was 11:00 had my breakfast and went to the computer room.

My Life being Disabled 29/09/07

Woke up 07:15 buzzed to get a bath. Had breakfast and went back to my room to met my wife and my social worker to discuss my future. The three options were, stay here, Leonard Cheshire Services or Castle Park.

My Life being Disabled 28/09/07

Woke up at 05:30 buzzed at 08:10,had a shower etc. went to the dining room at 09:40. Had breakfast asked the nurse to register with a NHS dentist. In the afternoon a carer had asked me to play scrabble but due to an emergency we didn't play instead I watch television all afternoon. I asked for my passport, chequebook and car keys again but the staff are reluctant to give them ? The nurse told me I could have them before my wife comes in the morning ! I asked if I can self-medicate put in the diary for Monday. I didn't go to the Acorn centre to join the Job creation course. This more like a prison than a Care home because I can't go out because all the doors have locks on them.

My Life being Disabled 27/09/07

I didn't get up until 09:00 because I watched television until 02:00. I phoned the hospital complaints department to change my address for the taxi to take me to the meeting 04/10 11:30.

My Life being Disabled 26/09/07

I woke up at 06:00 and at 07:00 I buzzed for my carers because I had meet life skills co-ordinator to go to The Acorn development to enrol in the libary, to find what courses I could join and what day the jobs creation course meets. I was suppose to meet at 10:00 but it seemed to me that the night staff were reluctant to get me up. They fobbed me off until the day staff came on duty. I was ready at 10:00 but I was advised that every Wednesday morning the doctor visits and I should go to speak to him. I tried to get my passport, chequebook and car keys but there was nobody in the office. My appointment was delayed until 13:45 and at the Acorn Centre I joined the library, didn't find a suitable course and the job creation couse is held every Friday afternoon. We came home and I read my Care plan then I joined in a quiz. After dinner I went in the computer room. I emailed the local council asking them if they had any newer compters

My Life being Disabled 25/09/07

Woke up at 07:00 buzzed at 08:10 but carers were busy so I got up at 09:10. I got into the dining room at 11:00. After breakfast I went to the computer room. I phoned the council to change my address on the Electoral register.I emailed wheelchair services to tell them I moved. After dinner I watched television until 23:00 then I went to bed

My Life being Disabled 24/09/07

Woke up at 07:00 buzzed 08:05 carers were busy only 1 hoist. Cleaned my teeth, shaved and showered. Went to the dining room had my breakfast. Went to the computer room it was 11:30 ! I'm setting my alarm at 06:30.
In the afternoon we had several quizzes.

My Life being Disabled 23/09/07

I have not blogged since 14/09/07 because a) been in hospital b) moved Care homes



On Sunday 16/09 woke up at 06:30 shaved and cleaned my teeth. At 07:05 the senior carer came to pack (I thought it was for hospital) she informed me it to move Care homes ? This had ben organised by the senior nurse ! I was to move Care homes straight after hospital ! I phoned the hospital at 12:00 to see if they had a bed the nurse told me to wait until the ambulance arrives and tell the driver to phone her. At 13:15 the ambulance arrived and he phoned the hospital - still no bed. At 17:15 the Care home nurse said a bed is now available to wait for transport. At 21:15 the ambulance arrived but I could not take my wheelchair I had to go on a stretcher. Got to hospital my own room with television but no remote.



On Monday 17/09 woke up at 05:30 cup of coffee, television and Doctor said he will see me later. I informed the nurse that I require an air-filled mattress. The doctor came in and ask the same question that I answered in the pre-assessment questionnaire and the nurses asked me last night. I asked the doctor why does the NHS use a big database and everybody use laptops he said it not secure ! At 06:00 a nurse came and informed me that I was having an operation this afternoon. At 08:55 the aeneithitist came and ask me the same questions again. At 09:10 the doctor came again and put a Cabbula. At 13:00 the surgeon came to explain what they are going to do. Get rid off all debris and if any stones break them up. My operation is the next to last and should performed about mid-afternoon. At 13:20 the consultant visited and said "hello". I started to read my notes but when the Ward Clerk saw me she took them off me and said you must pay to read these. I offered to pay but she wouldn't tell me who to pay. About 17:00 I went for my operation.

At 20:45 I woke up in the ward. I've got an air-filled mattress and I've had my operation but they didn't find anything.They change my catheter to a bigger one.

Tuesday 18/09 woke up at 06:00 at 08:20 I spoke to the doctors who said I was going for an ultrasound to check my kidneys and make sure I don't have a DVT.







At 15:30 because nobody has heard from the ultrasound dept. the staff nurse chased them. It will tomorrow because they have lost my card !



Wednesday 19/09/07 woke at 08:00 when a doctor came to look at my chart. Had breakfast then all the doctor came round. At 10:00 I went for an ultrasound for my kidneys and my right leg. This department measures 9 metres x 4 metres very small. The guy performing the ultrasound said I had one yesterday !!! BUT it was 18/09/06 exactly one year ago at another hospital. No problems back to the ward at 11:00. 11:25 the sister informed me that I am going to my new Care home. At 16:00 an ambulance came to take me to my new Care home.



At 16:30 I arrived at my new Care home and straight to a birthday party

At 20:30 I went to bed.



Thursday 20/09/07 08:30 Got up with a shower in my room. At 10:30 my Social worker phoned she is coming to see me at 15:30.

My Social worker wants to met my wife this is arranged for Saturday 20/09 at 11:00

She discussed my future because I'm only here on a short term basis about 3 months. She proses to move me to a place in Hull. We also discussed living independently but I can't afford this (I would have to contribute £100 WHICH IS THE MAXIMUM AMOUNT).

My Life being Disabled 14/09/07

I woke up 05:30 and had a shave and cleaned my teeth. At 06:40 my carers came and I had a wash and got dressed. I went to the dining room and had my breakfast.At 07:45 my taxi came (Wheels 01132 499999) and the taxi driver took me to my Work Preparation course run by paulalmond@best-train.com & stuartcockerham@best-train.com at the Belle Isle Foundation email foundation@belle-isle.co.uk excellent conference and training facilities.



This is the last time I'll be attending because I'm going into hospital for a Urology operation on Sunday. When I come out I should be moving Care homes to Dearnevale in Grimethorpe, Barnsley.



I don't know whether I can still blog ?

I had my Final Report from Paul Almond



Things I do on my last day of Work Preparation course.



Leavers Questionnaire

My Life being Disabled 13/09/07

I woke up 06:00 and had a shave and cleaned my teeth. At 06:20 my carers came and I had a wash and got dressed. I went to the dining room and had my breakfast.At 08:10 my taxi came (Wheels 01132 499999) and the taxi driver took me to my Work Preparation course run by paulalmond@best-train.com & stuartcockerham@best-train.com at the Belle Isle Foundation email foundation@belle-isle.co.uk excellent conference and training facilities.

I continued with my search for employment I applied for a data entry clerk with Adecco Recruitment Solutions and an administration assistant with Ritz Recruitment.

My Life being Disabled 12/09/07

I woke up 05:00 and had a shave and cleaned my teeth. At 06:20 my carers came and I had a shower. I went to the dining room and had my breakfast.At 07:30 my minibus came but I hadn't finished my breakfast until 07:45 then I went out to get in my minibus (Wheels 01132 499999) and the bus driver took me to my Work Preparation course run by paulalmond@best-train.com & stuartcockerham@best-train.com at the Belle Isle Foundation email foundation@belle-isle.co.uk excellent conference and training facilities.

I continued with Beginners course for SAGE Line 50 v11 Financial Controller Chap 24 Recurrrring Entries - I finished the course at 14:14

I also applied for 3 jobs - Unity Personnel, Office Assistant/trainee administrator
JHK, Administrator Assistant
Hays Office Support, PA to Chief Information Officer

my life being disabled 11/09/07

I woke up 06:00 and called for my carers to dress me. I didn't have a shave or cleaned my teeth because one of my carers had to finish at 07:00. I went to the dining room and had my breakfast.At 07:30 my taxi came but I hadn't finished my breakfast until 07:50 then I went out to get in my taxi (Wheels 01132 499999) and the taxi driver took me to my Work Preparation course run by paulalmond@best-train.com & stuartcockerham@best-train.com at the Belle Isle Foundation email foundation@belle-isle.co.uk excellent conference and training facilities.



I phoned my social worker and we agreed that I was moving Care homes after my appointment with the hospital. This starts on Sunday 16th September and should end on Friday 21st September. Also she would take my query about Social Care charges to the finance department. i.e. If I get a job with pay of £20,000/year what will be my Social Care charges be ? What will be the effect on Independent Living ? What happens to my assetts ?

my life being disabled 10/09/07

i use to blog at http://tillo.vnunetblogs.com/my_life_being_disabled/ but it has been switched off so i am using 'blogger'. this is my life being disabled (contd).

I woke up 05:30 cleaned my teeth and had a shave. At 06:50 my carers came and dressed me. I went to the dining room and had my breakfast.
At 08:15 my bus came ( Wheels, 0113 249 9999) and the bus driver took me to my Work Preparation course run by paulalmond@best-train.com & stuartcockerham@best-train.com at the Belle Isle Foundation email foundation@belle-isle.co.uk excellent conference and training facilities.

i applied for a trading standards post with buckingham county council

i also emailed my disabled employment advisor, my social worker, best and my care home to let them know that i'm going into hospital on sunday 16/09 for an operation that will be performed within a few days. see text....
On Sunday 16th September I will be attending H ward to have an Urology Operation. My operation will be performed within a few days. But on Tuesday 18th September my Works Preparation course ends. I propose :- 1) BEST - give me my final report this week (w/e 14/09/097) 2) JOBCENTRE - An appointment is then made with my DEA (Julie Goodman) so that we can discuss how I got on and the recommendations in the final report. We’ll then agree an action plan for the future which may include looking for work, training or further education. 3) ACCESS TO INTERNET - To enable me to finish the SAGE Line 50 Financial Controller training and access results of my current job applications, new job applications and job searches I will attend BEST every Friday (starting 21/09/07). Also Wheldon View provide internet access.

I emailed the person in charge of Welfare Rights & Assessments - Family Services for Wakefield MDC to find out......

When I start working again what will my Social Care costs be if I earn £20,000 ? If I live independently and earn £20,000 what will my Social Care costs be ? How does my Social Care costs affect my assets (our house)? now and both examples

I emailed my Care manager.....

I don't know if the night carers said anything but my night bag did not hold any urine last night. All my urine went on to the carpet because of a faulty bag. I usually get my bags via prescription but I have not been able to get them. Also, my district nurse, ordered some day bags and some items for my catheters but I have not got them. Is there anything wrong with the process ? Please be aware that on Sunday 16th September I should be going to H Ward Orology at Pinderfields and I should have an operation in the next few days.

When I got home somebody phoned about a meeting with Mid Yorkshire Hospitals on 4th October wanting to know whether I knew a taxi firm I could use ! Wheels 01132 499999