My Life being Disabled 31/12/10

Yesterday afternoon I went to Nettos to buy some wine gums, chilli, mushy peas, pringles and some soap. Afterwards I read my book until teatime. This morning I went to the computer room where I downloaded a video about Eddie Waring which was on BBC Iplayer.

My Life being Disabled 30/12/10

Yesterday I took paracetamols every 4 hours until 22:00. I went to the residents meeting where we discussed Mulligatawny soup and why it isn't available. One of the skills offered to get 20 tins every week. I said I wanted to go shopping and go to Nash's fish restaurant in Leeds. They said I could go to Leeds on the 10/01/11. The next meeting was on 17/02/11. After the meeting I sent an email to Nash's asking if there were any problems with wheelchair access ?
This morning I had my bladder wash but it was a different one the doctor changed it. After breakfast I went to the computer room where I read the reply from Nash's who told me their Fish restaurant is on the 2nd floor of a listed building and there isn't a lift. I also got a reply from PALS at Sheffield tellling me to forward my complaint to Yorkshire Ambulance Services. I forwarded and got an email telling me that they were dealing.

My Life being Disabled 29/12/10

Last night I went to bed at 18:00 because I had a headache. I took some paracetamols and watched the television. I couldn't get rid of it so at 22:00 I had some paracetamols. I couldn't go to sleep and I still had headache. At 02:30 I asked the nurse if I could have some more paracetamols which she gave me and told me to drink plenty of water. Between 02:30 and 04:00 I fell asleep but when the carer came to empty my night bag I woke up again. I fell back to sleep until 07:00. I felt like I had a cold because I was full of snot, my nose was running and I was getting mucus in my throat.
This afternoon there is a residents meeting at 14:00 which I want to discuss mulligatawny soup not available, I want to go to Leeds(Nash's Fish restaurant and shopping).

My Life being Disabled 28/12/10

Yesterday I went in the computer room but I didn't write anything in my blog. In the afternoon I watched television, did my exercises and read my book. This morning the nurse washed my bladder out and I asked when my catheter needs changing. After the carers changed my urine bag and I had my breakfast. I ordered a Boxfresh Balbutient Jacket from Ebay for £17. It should have been £65.

My Life being Disabled 26/12/10

Yesterday morning I woke up at 06:30 and asked the carer to turn my heating on full. I got up at 08:15 had my breakfast and went back to my room. My youngest son phoned me to wish me a merry xmas and to tell me he was coming at 11:30. One of the carers gave me a book from the home, Michael Caine biography. When my son came he gave me some Thorton's chocolates which were for diabetes. He went at 12:00n because my dinner was being served. I had carrot and corinander soup, Turkey, stuffing balls, carrots, brussel sprouts, parsnips, broccoli, roast potatoes, new potatoes and gravy. I had artic roll after with coffee. My eldest son and my wife came after tea. My son brought me a showe set and a furry hat and my wife brought me some Ferrari after shave. They left after 6 pm and I watched Dr Who.

My Life being Disabled 24/12/10

Yesterday afternoon after tea we were told a group called Bowden were playing in the conference room. They have played here before and one of the group is the daughter of the senior nurse. Their act lasted for 45 minutes and was quite good.

I woke up at 07:00 and asked the carer to turn my heating on full because I was cold.

My Life being Disabled 23/12/10

Yesterday morning after my breakfast I went back to my room, 36, because I had an appointment at the Mobility & Specialised Rehabilitation Centre at the Northern General Hospital in Sheffield. It was to check the moulded seat cast. The appointment was for 14:00 but the letter said to be ready at 11:00. I started reading the third book of Steig Larson's Milleniuem Triology. I went for dinner at 12:15 and my transport came at 13:05. The driver couldn't take me because her vehicle hasn't any wheelclamps. She contacted her control who told her there was no vehicle available. I went back to my temporily room and at 14:10 I was told we had a singer coming to entertain us. She was called Leanne and she did two acts. The first part was her normal singing act and the second was her tribute act to Lady Gaga.
After tea I went to my room because I was told it was ready but my Sky wasn't plugged in. I got a carer to plug my Sky in and I watch the television all night.
This morning I woke at 05:30 and I asked a carer if she would turn my heating on full. Later on after I had a shower I asked my carer if she could go to Nettos for some shaving gel, mouthwash, ginger buscuits and rich tea biscuits. I sent an email to PALS in Sheffield complaining about the waste of NHS resources.

My Life being Disabled 21/12/10

I got a letter yesterday asking me to ring the hospital about my teeth. I gave it to the nurse who told me I've got go on 19/01/11 at 10:45 to have a pre-op check and an operation on the 21/01/12 at 08:00. Later on, before teatime I had to move rooms because the carpet fitter were coming to put in a new carpet. I moved to 36 further down the corridor but I didn't have my sky or my DVD player. I was weighed last night 96.1 kgms but this morning I was weighed again 94.5 ?
It was very cold last night and I kept my heating on low but at 06:30 I asked my carer to turn my heating on full. I looked at the weather forecast for today in Barnsley and the day time temperature is -6'C.
When the nurse gave me a bladder wash I asked her if my catheter is due for changing ? She said she will check in their diary.

My Life being Disabled 20/12/10

Yesterday for tea I cooked a pizza, chicken and chiili. In the evening I watched Sports Personality of the year and the final of The Apprentice. At 05:15 I woke up because it was cold and I asked a carer if she would turn my heating on. I had my blood/sugar level taken which was 8.1.

My Life being Disabled 19/12/10

Yesterday afternoon after I did my exercises I continued reading my book until it was teatime. I asked the carers if I could cook a pizza for tea today.

My Life being Disabled 18/12/10

This morning I noticed I had run out of razor blades for my Fushion. After my breakfast I went to the computer room and order some razor blades from Amazon. I sent another email to the solictors who are dealing with my will. I told them that I had emailed them earlier informing them that the draft will requires 2 amendments but they have not replied.

My Life being Disabled 17/12/10

On Wednesday afternoon my carer went to Nettos but they had no shaving gel. On Thursday morning I stayed in my room because I had an appointment for Pindersfield Hospital in Wakefield for 15:00. I read my book by Stiegg Larson "The Girl who played with Fire" while I waited for my transport. I had my dinner and the transport came at 14:10. We arrived at Pinderfields at 14:50 and saw the doctor at 15:30. It takes about 15 minutes to fill my Baclofen pump up. I was ready to go home at 15:30 but my transport came at 16:00. One of the patients who was ready to home when I arrived was still waiting when I lefted.
When I got home at 17:10 I went to the dining room and my tea, two pork pies and mushy peas. This morning I asked my carer to change my catheter bag because I had a knee bag yesterday when I went out which is 1500 millilitres. When I came to the computer room one of the life skills brought my new glasses.

My Life being Disabled 15/12/10

Yesterday afternoon I did my exercises, had a coffee and watch a film on telly. I asked a carer to ask the life skills if I could cook a Vindaloo. They told me yes but it'll be after Xmas. My carer asked me this morning if I wanted anything from Netto's because the weather forecast says it's going to snow. She is going this afternoon and I told her I wanted some Q tips, shaving gel, wine gums and three packets of ginger biscuits. My eldest son texted me to see if I was O.K. and to ask me what I wanted for Xmas. I told him I didn't want anything.

My Life being Disabled 14/12/10

Yesterday morning my blood/sugar level was 8.3. At 10:40 we went out to our mini-bus because a lot of resident were going to Priory Campus to have our Xmas lunch. I was on the first run and we had another mini-bus as well. We got there at 11:10 and sat in the foyer while other residents came. Roundabout 12:00 we went in the community hall to get our places for lunch. I think that the mini-buses had to make 5 trips to get all the residents there.
At 13:15 our Xmas lunch was served, turkey, roast potatoes, carrots, brussel sprouts and seasoning. A big plate full which I eat it all. We were served with Xmas pudding and coffee. Afterwards we played bingo and had a karaoke. Because I was one of the first to arrive I was one of the first to go home. I got back at 15:00 and had a coffee.
Later on I got two Xmas cards one from my wife and one from my sister. I also got a letter to tell me I have got an appointment to measure me for a new moulded seat at 14:00 on 22/12/10 and I must be ready at 11:00. The nurse on nights ask me to review my Care plan and let her know if I want to change anything.

My Life being Disabled 12/10/12

Yesterday afternoon I didn't go to the Xmas Fair but I heard this morning it wasn't attended very well. I checked my bank account this morning and it was unavailable.

My Life being Disabled 11/12/10

This morning when I looked out of the window all the snow had melted. I checked my bank account and saw it was still unavailable. This afternoon it is the Christmas Fair and dinner will be served at 12:00.

My Life being Disabled 10/12/10

Yesterday afternoon at 14:00 I had a review meeting under the guidelines of NHS Continuing Healthcare see http://www.nhs.uk/chq/pages/2392.aspx with a nurse from the NHS Care Homes, my Social worker, the manager, a nurse and the senior carer from this nursing home. They discussed my 'performance' over the past year and what they felt I should be doing next year.....same this year. The meeting finished at 15:30

My Life being Disabled 09/12/10

Yesterday I put on a large catheter bag and my thermal underwear because I was going to The Alhambra in Bradford to see Hairspray. After breakfast I went to my room to put my hoodie on but I'd forgot that the zip was broken so I threw it away. Instead I put on my fleece. There were 5 residents going with 3 from my unit. We set off at 11:00, it was the first time I had been out in the snow. Our car park had been cleared but Elizabeth Street was covered with packed snow. Going through Grimethorpe the roads were clear but the footpaths weren't. We went through Barnsley to get to the M1. Around junction 40 I noticed that the snow wasn't as deep. We turned off onto the M62 and then onto M606 to get to Bradford. We arrived at the Alhambra at 12:10.
We went to a public house named Sir Titus Salt(Wetherspoons) which use to be The Bradford baths which was built in 1905. We ordered our food and bought a drink but the waiter told us our food won't be ready until 13:15. It was busy because of the matinee show and there were a lot of students as well. I ordered Chilli-con-Carne and large Lattee and mined arrived at 13:20 but some of the others didn't arrive until 13:35. Although we had rushed our meals we went in the Alhambra at 13:50 and we got in our places by 14:00.

Hairspray was a good musical but it didn't have a good story. Actors I recognised were Michael Starke who played Sinbad in Brookeside and Monkees star Mickey Donlanz. It lasted until 16:45 and we got into our bus by 17:00. We got home at 19:10 and we were all tired.
I had some Mullitawny soup and a coffee for tea. For the rest of the evening I watched television.

I woke up at 05:30 and asked my carer put my heating on. I must have fallen asleep again because I woke up at 08:15 when my alarm went off. I had my bladder wash, changed my catheter bag and went in the shower.

My Life being Disabled 07/12/10

Yesterday evening at 18:00 I went to bed because my catheter was by-passing. That was a mistake because I had headache and although I took paracetomals I did not get to sleep until 04:15. This morning it's dry and the snow is melting but it is still cold. One of the Skills reminded me that we're going to The Alambra in Bradford tomorrow. I've got to be ready at 11:00. see http://www.bradford-theatres.co.uk/event/hairspray-alhambra

My Life being Disabled 06/12/10

Yesterday teatime I had Chilli-con-Carne which I made in the Therapy kitchen. This morning I woke up when a carer came to empty my night bag at 05:15. I asked him to turn my heating on. When I went into the dining room and looked out of the window I noticed it was still freezing. I had my breakfast, Weetabix, and went to the computer room. The nurse gave me my pills but she didn't take my blood/sugar level. She's supposed to take this every Monday before I have eaten. My Santander account is still unavailable since last Monday because the fraund department are investgating why my account had £10 taken from it. If I see anybody from skills I'm going to ask if I can make some more Vindaloo.

My Life being Disabled 05/12/10

Yesterday afternoon I asked the carers to take a Chlli-con-Carne out of the freezer in the Therapy Kitchen because I want it for my lunch today. I woke up at 05:10 this morning and asked the carers to put my heating on. I buzzed for them at 08:15 to get up but they couldn't find my key. The night staff must have taken it home. They got the master key and opened my door. At breakfast I asked if my Chilli-con-Carne had been taken out from the freezer, a carer looked and she took it out.

My Life being Disabled 04/12/10

Yesterday I bought the new Bradford Bulls away shirt. My brother and his wife, Karen, came in the afternoon from High Wycombe. They said the snow in High Wycombe was only 1 inch but their travelling was easy because there wasn't much traffic. They are going to Leeds because they have an apartment in the City centre. This morning the snow is melting though it looks quite cold.

My Life being Disabled 03/12/10

Yesterday afternoon my brother phoned, who lives near London, to ask what the weather was like. He's going to come up tomorrow to see me. I told him we had about 12" of snow and as far as I could tell our village was cut off. He said he'll phone today before he sets off. I began reading the second book of Stieg Larsson's Millenium Trilogy "The Girl who played with Fire".
This morning it was very cold and when I watched the television it said overnight temperatures dropped to -20'C in some places. When I got up I had my haircut, I have cut every Friday and my carers cut it, we agreed this in my Care Plan. When I looked out of the dining room window it was sunny but the icicles were about 1 metre long.

My Life being Disabled 02/12/10

Yesterday afternoon I was supposed to have a Review Meeting with NHS but their representative didn't turn up. I finished my book 'The Girl with the Dragon Tattoo' by Stieg Larsson. This mornin when I got up it was snowing again and many of the nurses and carers had stayed over night. I finished changing my passwords on my computer.

My Life being Disabled 01/12/10

Yesterday I checked my bank account with Santander but it was not available. This morning I woke up at 02:30 because I was too warm. I asked my carer if my heating was on and he said it was so I asked to turn it off. I woke up again at 05:30 because I was too cold and I asked my carer to turn my heating on. I called my carer at 08:15 to get up but she told me because of all the snow there were only 3 carers at work so it might be a while. I got up at 08:35 and went for my breakfast at 09:30. When I looked out of the window there was, at least, 1 foot of snow. I went to the computer room to change my passwords. I checked my Santander account and it was still unavailable.