My Life being Disabled 30/05/08

Yesterday after having my bladder wash I began feeling pain in my right. This was most unusual because my right side is paralysed ! The pain started in my face, round my mouth, then down my arm and my leg. The nurse was with me and she said I should stay in bed for 30 minutes. But when she came back the pain was still there. She was going to call my doctor.
Later on she came to tell me my doctor had called an ambulance. At 12:30 the ambulance came and took me to the casualty department at Barnsley hospital. The nurses took my temperature,blood pressure and I had a EGC with everything O.K. After a hour the pain had become pins and needles. At 15:15 the doctor came and I told her what had happened. She was going to talk with my neurologist. When she came back she said it could be my nerve endings working again after 5 years. She told me to speak with my GP and he will prescribe something to null the pain. I got home just in time for dinner.

This morning after breakfast I decided to phone the conctrators who are delivering my powerchair. It was suppose to come at the end of April. When I asked they said it will be delivered on Monday ! I told my nurse.

My Life being Disabled 28/05/08

Yesterday my nurse reviewed my Care plan with me and the changes we made were :-
Care plan 3 Supra pubic catheter to be changed every 8 weeks
Care plan 4 Bath Named Nurse and Key Worker to try and find out information about Mick having a bath that Mick can fit in.
Care plan 8 HC2 form, Mick has registered with a HC1 NHS for the benefits decribed on the HC2 but this MUST be completed every year.
Care plan 11 Activities, to include the list of activities I gave to the life skills co-ordinators.
Care plan 11 Activities, to try to get Mick out in the fresh air more.

Today, after lunch, a life skills co-ordinator took me out to the lake which is about 1 mile away from Grimethorpe. Although it had just been raining it was very warm. We walked around the lake but we had to turn back because the footpath was very slippy on the hill. We went to Nettos where I bought some deodarant. We got back at 14:00, it was nice to go out and get some fresh air. The life skills co-ordinator said we'll go out again this weekend but we'll go to the other side of the village.

My Life being Disabled 26/05/08

I went to the computer room after breakfast and I loaded DIVX, Real Player and I reapplied to the Dell Support Centre with Model: INSPIRON 1720, Service Tag: BM9QB3J, Express Service Code: 252-912-055-51. Everything went well. The physiotherapist was working even though it is a Bank Holiday.

My Life being Disabled 25/05/08

Yesterday I didn't get my breakfast until 11;30 because we only had two carers with a nurse. Usually we have four carers. After lunch my catheter began by-passing again and when the nurse investigated she found a lot of truama(blood clot) in my urine. She decided to change my catheter even though it was changed last Thursday when I had a blood clot in my urine. After my catheter was changed I decided to stay in bed until dinner time. After dinner time I watch television in the cinema lounge.

This morning I got up at 08:30 and after my breakfast I went to the computer room at 10:30. When I was inputting my blog I noticed that my computer was running slow. Sometimes it did not run on the internet. On investigation I suspected a virus from the internet so I RESTARTED my computer and loaded the Dell Factory Image again. I always keep everything in my Hotmail so I don't lose it.

My Life being Disabled 23/05/08

Yesterday I went to NETTOS to buy some shower gel.

Today I spent most of the day in the computer room.

My Life being Disabled 21/05/08

Yesterday the Disabled Employment Advisor from the Jobcentre phoned me to ask where my job experience with Remploy is going ? I told her I have to phone Remploy when my electric chair arrives but I didn't know what difference this will make because I'm not sure whether I can use it outside. She said Remploy have look into this and they say I can. I said I don't know when it will come but I'm prepared to wait.

Today I've spent most of the day in the computer room.

My Life being Disabled 19/05/08

I asked my nurse if somebody could take me to the library. A life skills co-ordinator took me in the afternoon and I changed my book to Dawn French's biography. Going to the library and coming back I noticed that the footpaths in Grimethorpe are getting worse. I've already complained to Barnsley council about the footpath outside our Care home but they have not repaired it. I filled a form to find a building society account which I had in 1975 but I lost the book for. It is called 'mylostaccount' and it might take 13 weeks.